PEP Rockin' HalloweenOctober 26, 2009 by Victoria Yesterday was PEP's Rockin' Halloween and we had a rockin' time. I LOVE Halloween and I love that PEP has their yearly event the week before Halloween because wearing a costume just once is just not enough!!! And not only did we get to get Gwendolyn all dressed up in her adorable costume and spend time with friends, we also had the opportunity to talk to our community about SMA.
I think Gwendolyn has inherited my love of theater. I know most toddlers are not so hip on their darling Halloween getup, but Gwendolyn absolutely loved her little piggy ensemble. She fussed when I was putting her hair in pigtails and I thought for sure the costume would last 5 minutes, but as soon as I said, "Okay, no pigtails," she stopped fussing and was perfectly content to be fully clad in a pink puffy bathmat -- awesome! She smiled at herself in the mirror, was thrilled to have people compliment her, and wore the costume for nearly four hours. She eventually got a bit hot (and tired) and so we stripped her down to her darling Halloween shirt (thank you Sheri!). I can't wait to put Gwendolyn in her costume again this week.
I want to thank PEP for generously donating a booth to us and supporting our drive to increase SMA awareness. And I want to thank the awesome moms who helped host the booth, talk about SMA, pass out petition fliers, and take time away from their families to support our cause. We felt so, so supported and that motivates us even more!!!
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200k for sma gwendolyn strong foundation gwendolyn featured spinal muscular atrophy friends teamgsf fundraiser parenting a child with disabilities sma tips sma awareness concerned sponsor-a-mile hospitalization acts of kindness chase community giving news good things for gwendolyn birthday holidays development therapy video sma treatment acceleration act 3rd birthday doctor family research g-tube photographer travel giveaway special outing sma carrier screening newly diagnosed power chair sitting up grief 2nd birthday health insurance hospice clinical trial transportation 1st birthday unite for the cure adapted toys daily care smaheadlines.com medi-cal uncategorizedHide Tags
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