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$6,500 Raised for Gene Therapy Research in Honor of Baby Amanda

February 03, 2011 by Victoria Strong

Sweet baby Amanda is only 5 months old, but already her parents have taken the SMA bull by the horns. Not only did they fly from Panama to meet with multiple SMA experts and get their daughter the highest quality of care, but they have also taken on fundraising for SMA research. With the help of friends, Marcela and Juan organized a wonderful day of fun at KIDS PLAYGROUND, a popular birthday party destination in Panama. Over 200 people attended and they had games, a raffle, and lots of delicious food to make for an all around great day.

From Marcela:

The event was a huge success, the kids had lots of fun!

- We had candy, chocolate, and chips donated by Felipe Motta (they are a distributor and store in Panama)

- We had food donated by 3 caterers: Nicolina, Betzabe and Sofy

- We had activity gift sets donated by Farmacias Arrocha

- The place where the event took place (KIDS) was donated by the owner Tatiana Capriles and she also donated a piata, popcorn, sodas and the decorations.

We had a raffle and the prizes were donated; they were:

  • 1 night stay in Bristol Buenaventura hotel in a superior room (this is a luxurious beach resort in Panama) the night stay has a value of $450.00
  • 1 necklace "Ginette" (they are the initials necklaces that many celebrities have) donated by Joyeria Barakat valued in $800.00
  • 1 bracelet donated by UMA Boutique valued in $50.00
  • 1 keychain donated by UMA boutique in $35.00

And in addition to this fantastic event, Marcela has been actively asking friends and family across the world to donate to the Gwendolyn Strong Foundation for SMA research in Amanda's honor. And because of their efforts...drum roll...$6,500 has been raised for GSF's "$200K for SMA" gene therapy research campaign!!!

Thank you so much Juan, Marcela, and beautiful Amanda for fighting so hard. You are making a difference!

Related Campaigns

$200K For SMA—Phase One | $250,000 Granted | Funded SMA Gene Therapy Research $200K For SMA—Phase One | $250,000 Granted | Funded SMA Gene Therapy Research

Goal set, goal met, goal exceeded. Once AGAIN! Six months. Thousands of donors. Hundreds of organizers. 60+ fundraisers. Together we not only raised $200,000 for promising SMA gene therapy...

View More Campaigns

Talk About It

It is wonderful that we can support each other all around the world. Congrats on such a great event!
Posted by gettyowl on 2011-02-03 10:20:22
Victoria, you just amaze me each day! You and Bill have touched so many. Your voice is heard world wide. What an amazing accomplishment.
Posted by Laura Haywood on 2011-02-03 19:35:51
Wow - that is fantastic!!! Sounds like a terrific annual event smile 'Lucy'
Posted by Helen on 2011-02-03 21:15:34
I have to say that the organizer and the idea came from Tatiana Capriles, so thanks to her!!
Posted by Marcela Vallarino on 2011-02-04 08:20:28
[...] honor. The Cardoze family was part of the GSF’s “200K for SMA” campaign, raising $6,500 and they immediately signed on to continue.�Their uncle recently dedicated his birthday to the [...]
Posted by HUSH in Panama Hosting Shop To End SMA! � Gwendolyn Strong | Gwendolyn Strong on 2011-05-14 15:03:29

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