New Awesome SMA Resouce: InsideSMAFebruary 13, 2011 by Victoria
The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful. Everything from how to prepare for and manage mucus plugs to strategies for obtaining extra backup equipment; oral therapy techniques to the constantly needed mobile power advice (I know I will be sending this article to lots of newly diagnosed families!). There are also fabulous ideas for play and physical therapy using the awesome soft arm and leg slings Jaime Gooden makes and a guide for how to build a PVC support suspension system to use while a child is in a stander. Do you get excess condensation in your bipap tubing? Well the InsideSMA Shop sells the perfect solution! This is a great resource and they are adding new things regularly with helpful articles written by different SMA parents. Anyone who has a website must add a link to InsideSMA -- especially to help newly diagnosed families.
Check out the InsideSMA site here!
Visit the InsideSMA Shop here!
Join their Facebook Fan Page here!
And here is a news video of the Gooden family that also shows just how wonderful these arm and leg slings are for SMA children. (And it shows how darling their daughter Nora is, too!):
Thank you Gooden family for creating such a valuable resource that will help so many people!