Medi-Cal—-> one step closer…December 19, 2008 by Bill Strong We're one step closer to getting Gwendolyn accepted into the Medi-Cal system, California's Medicaid program funded by the State and federal governments. The program will open up many services for Gwendolyn -- the most immediate we hope would be more nursing hours during the day to provide us respite. We've been denied several times by Medi-Cal based on their standard criteria, mostly based on income/assets, but over time we've learned that there are special waivers for certain diseases, such as SMA1, and for certain circumstances. The trick is figuring out for which services waivers and exceptions such as this exist and then figuring out what the process is to get to the right person or organization who can help get you through the system. The process reminds me of the old-school version of the game show Let's Make A Deal -- with many different curtains to choose from...most of which contain zonks
As with many things that we've found through this journey, you just have to keep on researching and keep on fighting. It just amazes me that the system isn't set up such that when you are in a situation that fits into one of these special waivers or exceptions, the system doesn't come find you -- novel idea, I suppose. Although the process with Medi-Cal will still take several months from here, it is comforting to know that things are moving in a direction, hopefully the right one, and needless to say, I'm glad that we are closer today than we were yesterday. Hopefully no more zonks for us along the way
Looking back on our experience thus far with SMA, navigating the muddy resource waters and health insurance behemoth -- don't get me started on insurance -- has proven the most frustrating for me. Processing a terminal diagnosis such as SMA is difficult enough, but coping with the reality of the situation from a practical, day-to-day point of view has proven to be a full time job. In the months since Gwendolyns diagnosis we have found that the resources -- government, national, and local -- exist, and they exist in abundance, but finding and navigating them can feel next to impossible at times.
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Are You An SMA Carrier? Advocating for the Affordable Care Act: Gwendolyn's Story (Video) It Arrived!!! Let the Adventures Begin!
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