Blog

Kindness

August 26, 2010 by Bill Strong

In all of the sadness and the grief that comes with SMA...in all of the frustration with having to fight for so much while sometimes barely holding on...in all of the years we've now lived with this disease -- the kindness of others continually amazes us and leaves us simply speechless. Sometimes its a simple gesture of acceptance. Sometimes it is a thoughtful consideration. Sometimes its the incredible generosity of both friends and strangers. It always leaves us uplifted and certain that while we are in enormous pain, there is so, so, so much good in this beautiful, wondrous world. We truly cannot begin to thank you all adequately for supporting us, encouraging us, and loving our little girl.

Thank you Chris for creating this wonderful video -- out of the blue, for no reason, just because...Speechless...simply speechless....

Talk About It

I support you and would like to give as a way of recognizing SMA and spreading awareness, is there a link that I can follow to this end? -I am a southeast regional truck driver for Schneider National and I follow your blog and tweets regularly! Thanks, -Ron.

Posted by ron odoski on 2010-08-27 03:47:09

Beautiful, leaves me speechless and in tears. Such a gorgeous girl, such a wonderful family. Working everyday to spread the word here.............. hugs to Miss G

Posted by Penny on 2010-08-27 06:15:25

What a beautiful video of a beautiful family!!! 'Lucy'

Posted by Helen on 2010-08-27 06:33:15

that is so wonderful! I especially love the picture of the three of you at the pier with the sailboats behind you...gorgeous! You are such an amazing family who have touched so many of us!! Thank you! be well, Lisa

Posted by Lisa Prokopetz on 2010-08-27 16:52:58

Beautiful. I was tears by the 2nd photo. You three are so beautiful and the love you feel for each other radiates through your eyes. It has been a blessing to get to know you these last 2+ years. --Mari

Posted by Mari aka "Thorney" on 2010-08-27 22:26:22

that is so nice! She is one loved little girl

Posted by Hillary on 2010-08-29 17:02:24

Beautiful. I just love you guys!!!

Posted by Dorothy on 2010-08-31 08:03:40

LOVE it, she is gorgeous, and your entire family is so inspirational!

Posted by Ann on 2010-08-31 12:24:54