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Gwendolyn stable, but in PICU

August 04, 2011 by Victoria Strong

Oh Gwendolyn. She likes to keep us on our toes. We are at Stanford right now in the PICU. It's a bit of a long story and the truth is we don't really know all the chapters yet. She is stable and happily watching lots of movies, but something isn't quite right. For the last few weeks we have been noticing different things and as time has gone on new oddities keep being added to the list. It hasn't been consistent, which is the confusing part -- three good days, followed by one day of low numbers, two good days, followed by one day of whimpering, four good days, followed by not coming off bipap. All the while Gwendolyn is, well, so Gwendolyn -- loving adventures, loving playing, loving life!

We went to Las Vegas over the weekend (and had an absolute blast with our dear friends -- will post soon), but she had one night of low numbers and she wasn't comfortable on the drive home (although the rest of the time she was fine). And then she decided to throw up the day we got home. We knew it was time to call "The Mountain Mover" aka Dr. Nanci Yuan, Gwendolyn's fabulous pulmonologist at Stanford. And so, here we are.

The really good news is all the major big respiratory things have been ruled out and Gwendolyn's lungs are clear. But that leaves us with a puzzle. Gwendolyn has a pattern of doing things that aren't always typical or expected and this seems to be another one of those things. She has now had scans and xrays and scopes and swabs and blood draws and the puzzling is still being puzzled. We are worried, as any parent would be, but we know we are in good hands -- we adore Dr. Yuan and all of the amazing nurses and doctors at Lucille Packard Children's Hospital, but they need us to stay put for now.

Talk About It

Oh my gosh... my heart just stopped when I read the title. I am so glad G is stable, by I can't help but worry. I hope you are able to return home and to normal soon. I know how scary those throwing up episodes are, especially when you don't know why. Big hugs to you both and Miss G. Keeping you in our thoughts.
Posted by Jaime Gooden on 2011-08-04 17:33:51
We are so sorry to hear Gwendolyn isnt feeling her best!! Sending lots of xoxo and get well wishes to her and you all!!!!
Posted by Jennifer Garner on 2011-08-04 17:47:13
HUGS all around and tell Miss G. a box is waiting for her in SB....... I think the big brown truck brought it today! smile
Posted by Margaret on 2011-08-04 17:48:11
Grrr...SMA! So unpredictable and weird. Praying for a solution and lots and lots of healthy days ahead for Gwendolyn! HUGS and love.
Posted by Corinne on 2011-08-04 18:13:57
Gwen-do- lyn...we dislike this! Get better soon sweetheart~
Posted by Hillary on 2011-08-04 18:21:12
Oh no, I hope you get it figured out and soon. We'll add Gwendolyn to our prayer list.
Posted by Debby St. Onge on 2011-08-04 18:33:05
Okay, the title had me in tears...so very, very glad to hear that she's stable and in good hands with Dr. Yuan. I hope Miss G gets well soon and gets back home. Our thoughts and prayers are with you!!!!!!!!!!
Posted by Audra on 2011-08-04 18:38:59
Knowing prayers for Gwendolyn are plentiful, I only hope that our little prayer for sweet Gwendolyn can help just a little extra. Get home soon!
Posted by Donna Campbell on 2011-08-04 18:44:19
Oh darn it! I was hoping that the Drs. figured out the puzzle Gwendolyn has laid out in front of them and had sent you packing. We believe you when you say she is stable but that won't keep up from worrying just a bit. Praying big time for your sweet girl!
Posted by Penny on 2011-08-04 18:48:02
Wishing for a speedy recovery...
Posted by Eytan Elbaz on 2011-08-04 18:50:41
So very sorry to read this! My heart breaks to hear that Gwendolyn is in the PICU, I will keep her in my prayers and will be thinking about her constantly.
Posted by Shellie Lopes on 2011-08-04 19:05:31
We love you guys, praying Gwendolyn is out of there soon!
Posted by Dorothy on 2011-08-04 19:09:40
Praying that Gwendolyn is feeling better and outta there! ((((HUGS))))
Posted by Kristen on 2011-08-04 19:15:45
Lots of love and prayers being sent your way beautiful Gwendolyn! Hugs to your Mommy and Daddy to for a little extra strength when they need it most! xo
Posted by Lisa Moffat on 2011-08-04 19:29:08
Oh my goodness, my heart skipped a beat when I read this. I am glad she's stable and am praying you figure out what's plaguing her very soon so you can all go home. Please give her a butterfly kiss from Nicholas smile
Posted by Jessica on 2011-08-04 19:36:41
She is a fighter, just like her mom and dad. G just wanted to go to the hospital to spread some SMA awareness for the month of August! I will definitely be ending healing thoughts your way! I hope that you and Bill can find some peace while you're there. If I can do anything please let me know.
Posted by Nurse Kim on 2011-08-04 19:57:08
Sweet girl. Hope they figure out what's going on soon!! Love and prayers for you all!!
Posted by Devon on 2011-08-04 20:14:42
Oh no!! I hate to hear that Gwendolyn is not doing well!! Such a trooper though. She's a doll. I will certainly keep her in my prayers! We're actually heading to Lucille Packard Hospital in Oct. for a drug study through Dr Enns. You're in good hands!!!
Posted by Tera on 2011-08-04 20:38:52
I am so sorry she's not feeling 100%....Glad you are able to see Dr. Yuan, say hi to her from us...I hope G gets over this soon. Big big hugs!!
Posted by Marcela on 2011-08-04 20:49:17
Oh! We are thinking and praying a lot for the three of you. We hope the puzzle gets solved soon. Best wishes, JD, Marcela & Mandy
Posted by JD on 2011-08-04 20:53:34
Sending good thoughts your way and hoping that all of you guys are back on the road to more adventures!
Posted by Holly on 2011-08-04 20:59:50
Praying for sweet Gwendolyn. She is SUCH a trooper. She is going to pull through this too!! You and your family are in our thoughts tonight. Hugs to G.
Posted by Tara Smith on 2011-08-04 21:00:47
As my messages have said over the last few days: We love you and are keeping all the love and prayers flowing northward from all of us, to all of you! Hoping that home is around the corner in no time.
Posted by Zoey's mom on 2011-08-04 21:01:22
Sending lots of healing energy to Gwendolyn and much love to all of you
Posted by MT Grandma on 2011-08-04 21:29:50
Thinking about you guys and praying miss G busts out of there soon.
Posted by Tony Burks on 2011-08-05 06:06:52
Thinking about you guys and sending up lots of prayers for everyone.
Posted by Hallie on 2011-08-05 07:50:10
Sending prayers, hugs, all our love from J, K, C & A
Posted by Kelly Gillespie on 2011-08-05 09:15:18
Thinking of you and praying for you all!! I hope they can figure out what is going on quickly so that you can be home soon and G can be feeling better. Sending lots of love, hugs and strength your way!! Em
Posted by Emma on 2011-08-05 09:39:22
Praying its just a odd fluke and Miss G comes home well super fast!
Posted by Lisa on 2011-08-05 10:03:54
Sending lots of hugs and good wishes for a speedy recovery. We love you G!!!!
Posted by Laurie on 2011-08-05 10:10:28
Hugs to Miss G! Get well soon!
Posted by gettyowl on 2011-08-05 15:56:40
Oh I hate to see her not feeling her best. Hope it can be a quick stay! We will anxiously be waiting to hear what's up. Sending big hugs and prayers!!!
Posted by Lindsey on 2011-08-05 17:06:16
Sending unending love, concern, positive energy, hugs, and kisses to you all ~ Miss G continues to be a valiant warrior princess...she'll conquer this setback with her usual grace and courage..as will her mom and dad.
Posted by Sheri on 2011-08-05 17:49:08
Victoria, As always I think of you often and will be saying prayers for Gwendolyn..Keep us posted and my love goes out to all of you....Get well soon Little Princess!!!!
Posted by peggy cameron on 2011-08-05 22:20:07
I am so sorry, and we have Gwendolyn in our prayers for a speedy recovery. Please keep us posted, although I know you have much more on your mind and hearts right now. I wanted to let you know that our Safeway, here in Seattle, is collecting for MDA at the register and I asked the manager to share about SMA when he makes the announcement every 1/2 hour, and he did--all day Friday, and will do it again throughout the month they are collecting. I sent him to your blog for information. --Mari
Posted by Mari on 2011-08-06 00:20:20
Wishing you all the best and exhuberant amounts of healing thoughts for Miss G. So glad she's in good hands! From one parent to another there's always worry... and uncertainty can feel like insanity till the answers come. Please know there are so many of us praying for her and your family!
Posted by jillian on 2011-08-06 04:23:45
I am one of your silent, but loyal, followers....this post has provoked me to let you know I'm thinking about Gwendolyn and both of you. Please know you are in my thoughts all the time and I'm pulling for Gwendolyn!!!
Posted by Michele on 2011-08-06 06:15:19
Wishing Gwendolyn and you lots of rest and I can't wait to see her when we get back to school. Let her know that we have lots of fun things planned and that I can't wait to be by your sides. Love, Teacher Amy
Posted by Amy Perez on 2011-08-18 14:08:52

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