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Gwendolyn and SMA on NPR!

September 30, 2010 by Victoria Strong

We are beyond excited! NPR or National Public Radio's highly respectedCalifornia Report is airing an interview about Gwendolyn and spinal muscular atrophy (SMA) this Friday and Saturday! The segment will be aired statewide on Friday at 4:30pm PT on over 30 stations and again inSanta Barbara and Ventura County on Saturday at 2:00pm PT on NPR's KCLU 102.3FM (you can also listen to this segment live online at KCLU's website).

We first met freelance radio producer Diane Bock, who is also a respiratory therapist, when Gwendolyn was hospitalized with a collapsed lung at 7-months-old. Although she was only our respiratory therapist once, she said she has kept up with Gwendolyn and our family because we left an impact on her. We hadn't spoken to Diane until she emailed us in May of this year. This summer she took part in the covetedDuke University's Center for Documentary Studies program to craft an audio documentary on a subject of her choosing. She selected SMA and Gwendolyn's story. We met with Diane several times in the early summer and she recorded hours and hours of us talking about our life with Gwendolyn, SMA, GSF, the SMA Treatment Acceleration Act, etc. (we tend to be a bit long winded when we get going on this stuff. smile) And we are very excited that the California Report liked what she created so much that they had her edit a specific story for them. We haven't heard it yet, but we were so impressed with Diane that we know it will be a wonderful opportunity for SMA.

The California Report provides daily coverage of issues, trends, and public policy decisions affecting California and its diverse population. It is carried by more than 30 radio stations from Arcata to San Diego, reaching millions of Californians.

Tune in to the California Report on Friday at 4:30 pm PT. To find your specific station click here. If you miss the segment on Friday, you can catch it again on Saturday at 2:00pm PT on KCLU (Santa Barbara/Ventura County) 102.3FM or online at their website.

NPR - California Report - A Family Fights Spinal Muscular Atrophy - Reporter Diane Bock

Click on the orange play arrow below to listen to the segment or click HERE to go to the California Report website:

NPR - A Family Fight Spinal Muscular Atrophy by stronwi

Thank you so much Diane for helping increase awareness of SMA on such a respected scale. And thank you NPR and California Report for getting this story to millions of Americans!

Talk About It

I am going to listen via the internet here in WA.
Posted by Mari on 2010-09-30 14:34:46

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