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GSF: This is SMA Video

November 30, 2010 by Victoria Strong
We showed this new video at this year's "Golf For A Cure" tournament, but it is one we've been working on for general SMA awareness for some time. We wanted to approach explaining SMA from a slightly new way, do something a little different, and we hope that it has an impact. That's the point. We know our messaging is blunt, brutal -- just like this disease. And we get that it's not what everyone wants to hear.But from the time of Gwendolyn's diagnosis, we have felt that it is necessary. Our goal has always been to reach new people. That is our hope in all that we do with GSF. To make those who have never heard of SMA stop, take notice, and feel empowered to help change the current reality of this awful disease. At our core, we believe that knowledge brings change.

Our messaging has always been direct. And it has always been from the perspective of our experience with Gwendolyn. It's what we know. As we look back on our very first PetitionToCureSMA.com video, on our second, and on the Be Part of a Miracle video we made for the Chase contest, our approach hasn't changed that much. Sure, we've become more polished. But our message has always been that SMA is a terrible disease, is cruel, is fatal, but with broad collective efforts can one day be cured. It's what we believe. And it's what we believe will help change the future of SMA. We have been enormously flattered to see other nonprofits, a few even outside of SMA, replicate and borrow what we have done -- our language, our style, our messaging. That's great. That means it resonates. That means it is making people stop, take notice, want to be involved. And that is the point.

Because this is SMA. SMA is happening right now. SMA is happening every day. To loving, devoted families. And it is devastating. But research has never been as close as it is today. That is a fact. And there is something we can ALL do NOW -- continue building on the stepping stones built over the last 20+ years and get involved to bring an end to SMA.

So please, help us continue reaching new people. Blog, post on Facebook, tweet, whatever it is you always do to help. Together we can end SMA!

This is SMA.

Talk About It

Well done! Thank you! We greatly appreciate all you do.
Posted by Mark on 2010-11-30 08:21:56
Love it! It is truly beautiful and blunt at the same time. Now only if we could get some air time perhaps during the Super Bowl or something... I the mean time we'll keep sharing it every way we can. Thank you yet again for everything you do!
Posted by Kristen on 2010-11-30 08:32:06
I second Mark - this is so good!!! Thanks so much for all you're doing. Off to share.... 'Lucy'
Posted by Helen on 2010-11-30 08:33:41
Well done, once again, Strong Family! You keep the hope alive for all of us. Thank you for all you do!
Posted by Laurie Potter on 2010-11-30 09:58:06
Wow, you just continue to push it! Here I sit with tears falling and nose running, continued prayers for your family and all of the families that fight the cruel effects of SMA on their precious children everyday. You are such an inspiration for all you do.... thanks for helping me to live outside my own little world....... Penny
Posted by Penny on 2010-11-30 12:52:06
The new video is wonderful, as are you. Another job well done.
Posted by Legally Fabulous on 2010-11-30 16:13:53
My heart breaks for every family living with SMA. I posted your video on my FB, and hopefully people will take a minute to watch. --Mari
Posted by Mari aka "Thorney" on 2010-11-30 16:25:34
great job! I am going to copy it!
Posted by Hillary on 2010-11-30 16:32:23
BEAUTIFUL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! LOVE IT!!!! LOVE YOU!!!!
Posted by lauren lundy O'Connor on 2010-11-30 17:44:15
I love the video. It definitely sends a message. I hope we can find a cure SOON! Joanna
Posted by Joanna McLaughlin on 2010-11-30 18:00:46
The video is good and will inform people about SMA and how bad it is for baby and family. Thanks for doing it. I pray for a cure before my daughter has children.
Posted by Nancy Claar on 2010-12-01 00:47:45
Thank-you yet again Victoria, Bill and Miss G. I agree with Kristen, Beautifully done and to the point. Maybe that air time might yet come. Someone who knows somebody with influence might just forward this on and they`ll find it in their hearts to give this dreadful killer disease the publicity it needs. None of us know just when and where it will strike next. I have been blessed not to have had to deal with this, but that doesn`t mean that my grandchildren won`t be faced with it.My thoughts, love and prayers are with you.
Posted by Carol on 2010-12-01 19:01:44

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