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Feeling Sad

January 14, 2011 by Victoria Strong
This was supposed to be a good things post and there are lots of "Good Things For Gwendolyn" for me to post about -- she started preschool again this week, she held a salamander yesterday, she did a little bit of gardening (not really her thing), she swung on the swings, Daddy went to preschool with us, and there are other things that are helping to keep my heart together. Gwendolyn does that -- she is what keeps me glued in one piece.

Three children with SMA passed away this week, including our sweet friend Karson Riggs who passed away yesterday. Karson has been sick for some time, growing weaker, but it doesn't make it any easier. He was a very brave little boy who has been through enormous medical challenges, but he fought through them with his adoring big sister and loving parents by his side. Karson loved Toy Story and especially Woody. He was Spider-man for Halloween -- an absolutely adorable one. He just beamed with his sister by his side and she clearly doted on him. Karson was a beautiful baby and grew to be a darling two year old...two year old. He would have been three in April, but still two. Yes, only TWO.

I am heartbroken to lose another friend to this dreadful disease -- heartbroken. But mostly I ache for his family -- his kind, thoughtful, wonderful family. And I wish the realities of SMA were very, very different.

Talk About It

I know it's just awful! I cried all day yesterday. Hug Gwendolyn for us!
Posted by Lindsey Coleman on 2011-01-14 09:21:28
My thoughts and prayers are with all these families and of course the three of you as always. Hugs, Em
Posted by Emma on 2011-01-14 09:29:30
Thinking about G and wishing her strength and good health. My heart aches for the family of sweet little Karson.
Posted by Laurie on 2011-01-14 09:45:57
My prayers to all the families.This just isn't right. Give Gwendolyn a hug for me and I send my love to you and Bill.
Posted by Peggy Cameron on 2011-01-14 10:07:50
My heart haas just been broken for all the loss this week. These precious babies and their families that long to hold them again............. the bonds between parents and siblings with thier precious babies that are taken so soon is amazing. So intune, truely beautiful......... Wanting to shout from the rooftops so EVERYONE undserstnads why tomorrow is too far away to find a cure............ hugs to you all and paryers for families missing their babies........ Penny
Posted by Penny on 2011-01-14 12:32:56
Sending you love my friends.At a loss for words but abundant in prayers for you all and Karson's heartbroken family.
Posted by Zoey's Mom on 2011-01-14 12:41:46
My heart breaks for the Riggs family and all of you living with SMA. Keeping all of you in my prayers. --Mari
Posted by Mari on 2011-01-14 21:33:10
Oh, I'm so sad for you, and for all these families. My son is a brain tumor survivor. We've lost way too many families to childhood cancer. My heart breaks to read any child goes through such challenges. Your daughter is beautiful. I'll keep you guys in my prayers. So nice to meet you?
Posted by Susan on 2011-01-17 21:40:08

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