Blog Archive 01/2015
The PRAYING FOR A MIRACLE NEW YEARS EVE GALA in Lynden, Washington was a huge success. Inspired by 10-year-old Taysen and his positive attitude, this selfless community turned the typical New Years Eve fun into a night of CHANGE. Over 300 people rang in the New Year for a good cause, raising...Read More >>
Our silly Eleanora turned ONE today. And, oh, what a year it has been! A magical, wonderful, challenging, learning, growing year it has been as a new family of four! Eleanora is joyful and silly, curious and eager, and in all her tininess brings levity to the unrelenting ravages of SMA and our...Read More >>
We are extremely excited to announce our Finalist Grantee for the 2014 "FightSMA/Gwendolyn Strong Foundation Emerging Investigator Awards" program: Dr. Barrington G. Burnett, Assistant Professor, Department of Anatomy, Physiology and Genetics, Uniformed Services University of the Health...Read More >>
We are so excited. Musician Hannah Williams wrote and recorded this wonderful song: Never Give Up -- and 100% of the purchase is being donated to the Gwendolyn Strong Foundation.
She wrote it for us. For the SMA community. To inspire. To be part of the change. And we think it's beautiful --...Read More >>