Blog Archive 12/2013

Shop With Purpose

December 07, 2013 by Victoria Strong

We are so honored that our Project Mariposa iPad program was selected by We-Care as Cause of the Month alongside the National Autism Association's iPad program. With YOUR online shopping, YOU can empower children with SMA and Autism by granting them iPads. It's easy...

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NPRNA Signed Into Law By Obama. We Reflect On Our Personal Journey With SMA Legislation.

December 04, 2013 by Victoria Strong

Last Wednesday, the National Pediatric Research Network Act (NPRNA) was officially signed into law by President Obama. And, for us personally, passage of this legislation feels like a triumph that has come full circle to the beginning of our SMA journey.

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