Blog Archive 02/2013

National Pediatric Research Network Act is Reintroduced in the Senate

February 28, 2013 by Bill Strong

In a major step forward for the advancement of clinical research for Spinal Muscular Atrophy (SMA) and other pediatric disorders, the National Pediatric Research Network Act (NPRNA), was reintroduced today in the U.S. Senate. The legislation’s introduction comes just weeks after a bipartisan...

Read More >>

Yummy Mummy Kitchen Cookbook

February 26, 2013 by Victoria Strong
Yummy Mummy Kitchen Cookbook

One of my bestfriends wrote a cookbook! Marina has always been a super GSF supporter but we are simply blown away that in her moment of success she is still thinking of ways to help the SMA cause. The Yummy Mummy Kitchen officially goes on sale April 2nd and for all of you who pre-order the book...

Read More >>

Team GSF in the 2013 Boston Marathon!

February 19, 2013 by Bill Strong
Team GSF in the 2013 Boston Marathon!

We’re so excited! Team GSF will be representing this year in the 117th Boston Marathon! You know...the world’s oldest annual marathon and one of the five World Marathon Majors. Yup, that one! And not just one runner. Not just two. Not three. But FIVE Team GSF runners will be pushing themselves to...

Read More >>

Finding Perspective On The Tough Days

February 17, 2013 by Victoria Strong
Finding Perspective On The Tough Days

Some days are just hard. For anyone facing struggles, NEVER GIVE UP isn't that we don't feel the heartaches or pretend all is okay. It is that half the time we have one foot in the abyss and, in spite of it, we find a way to keep moving forward. Taking Gwendolyn to the beach, watching Bill point...

Read More >>

Gwendolyn’s First Daddy/Daughter Valentine’s Dance!

February 04, 2013 by Bill Strong
Gwendolyn’s First Daddy/Daughter Valentine’s Dance!

On Saturday night I was most definitely the luckiest guy in the entire world. I put on a suit and tie, picked up a dainty white rose corsage at our local florist, and escorted my little girl to her very first school daddy/daughter Valentine's dance. Gwendolyn looked absolutely beautiful, we had a...

Read More >>

Popular Posts

Tags

Archive

2017
October (3)
September (1)
April (1)
March (1)
January (2)
2016
December (1)
November (1)
October (1)
September (2)
August (2)
July (1)
June (1)
May (1)
April (2)
February (2)
January (4)
2015
December (2)
November (1)
October (2)
September (2)
August (4)
July (3)
June (2)
May (1)
April (2)
January (4)
2014
November (3)
October (3)
September (3)
August (3)
July (3)
May (1)
April (1)
March (5)
February (2)
January (2)
2013
December (2)
November (3)
October (3)
September (3)
August (4)
July (2)
June (4)
May (3)
April (4)
March (3)
February (5)
January (5)
2012
December (3)
November (8)
October (4)
September (5)
August (8)
July (7)
June (8)
May (8)
April (9)
March (7)
February (9)
January (9)
2011
December (9)
November (16)
October (15)
September (14)
August (15)
July (16)
June (13)
May (27)
April (22)
March (21)
February (20)
January (21)
2010
December (19)
November (22)
October (16)
September (23)
August (23)
July (27)
June (24)
May (24)
April (21)
March (26)
February (19)
January (24)
2009
December (21)
November (20)
October (31)
September (25)
August (25)
July (47)
June (44)
May (34)
April (27)
March (35)
February (35)
January (35)
2008
December (37)
November (22)
October (31)
September (20)
August (30)
July (27)
June (18)
May (5)
April (6)
March (3)
February (1)
January (2)
2007
December (7)
October (1)