Blog Archive 03/2012

Team Owen: 200+ Runners, $20,000+ Raised, Impact Immeasurable

March 22, 2012 by Victoria Strong
Team Owen: 200+ Runners, $20,000+ Raised, Impact Immeasurable

The New Bedford Half Marathon just took place on Sunday, March 18th in New Bedford, Massachusetts. Every year thousands of runners gather to take on the hills (and often bitter cold) and take in the rocky New England coastline. And for the second year in a row Team Owen made a massive presence...

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Trike-A-Thon Raised $1,000 | Diamond Bar Rummage Sale This Saturday

March 20, 2012 by Victoria Strong
Trike-A-Thon Raised $1,000 | Diamond Bar Rummage Sale This Saturday

This fall my childhood friends, Theresa Portugal and Adri Benton, hosted the 2nd Annual Trike-A-Thon for SMA. This was completely their idea, they organized the entire thing, got their friends and family involved, and raised $1,000 in one afternoon! Amazing! And THIS SATURDAY they are hosting a...

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We-Care.com honors theGSF as “Cause of the Month”, surprises us with $10,000+ donation

March 12, 2012 by Bill Strong
We-Care.com honors theGSF as “Cause of the Month”, surprises us with $10,000+ donation

We love going to theGSF mailbox. There are often small surprises. Sometimes big. Sometimes huge. And we love each and every single one of them. They are our personal validation that our hard work and unique programs are making a difference. And that our passion for the SMA cause is not falling on...

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$15,000 Donated in Honor of Taysen Langstraat

March 08, 2012 by Victoria Strong
$15,000 Donated in Honor of Taysen Langstraat

The Praying For A Miracle gala was an absolute success. As a way to ring in the new year and bring hope to families dealing with rare diseases, Lynden, Washington residents rallied around the Langstraat and Demeyer families in their fight to find a cure for Spinal Muscular Atrophy (SMA) and...

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The Good Stuff

March 06, 2012 by Victoria Strong
The Good Stuff

Miss Gwendolyn is doing great and she has loved all of those activities and so have we. BUT.... I will be fully honest (and I suspect many of you have already picked up on it) -- in all of the goodness, there has also been a little kernel of uneasiness. I don't really know why. We started the...

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Project Mariposa :: {WEEK FIVE} iPad Grants #15-17

March 02, 2012 by Victoria Strong

We are so thrilled to introduce you to Project Mariposa grant recipients #15, 16, and 17. Congratulations to all of you. We hope these new iPads help open the world for you. Introducing...

 

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Project Mariposa {Month ONE} Recap and a Surprise

March 01, 2012 by Victoria Strong
Project Mariposa {Month ONE} Recap and a Surprise

It has been a month since Project Mariposa officially began granting iPads and in that one month 14 iPads have been awarded to those with spinal muscular atrophy (SMA). And 14 lives are getting just a little bit easier...but we are only getting started. We named this program "Project Mariposa"...

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