Blog Archive 08/2011
And...Read More >>
Santa Barbara and its residents have been nothing but embracing since Gwendolyn's diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends...Read More >>
Gwendolyn has had another rough week. And this weekend was down right lousy. The good news is that from a respiratory standpoint she is healthy -- that is very, very good news for SMA. The bad news is this darn infection (or the problem we can't seem to figure out) just won't go away. It is now a...Read More >>
Team "Lucy's Legs" will be riding 90 miles around Lake Winnebago this weekend in Race The Lake 2011. Lake Winnebago is one of the largest...Read More >>
We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless.
These families and their stories represent what this disease really is. SMA is far more than its brutal...Read More >>
Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about...Read More >>
Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has SMA.
For the entire month of August Amanda...Read More >>
Gwendolyn is actually a Vegas veteran. Yep, at...Read More >>