Blog Archive 06/2011

Good Things For Gwendolyn: Wizard of Oz

June 29, 2011 by Victoria Strong

She's obsessed. Totally and completely obsessed with the Wizard of Oz. What happened to my little baby? How do I have a child big enough to be fully captivated by a film made in 1939? I know, I know -- it's a classic. But never in a million years did I think my Little Miss Particular would not...

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Strawberry Festival Goodness

June 28, 2011 by Victoria Strong
The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the...
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Father’s Day Under the Big Top

June 26, 2011 by Bill Strong
To be honest, I've always felt a bit odd about Father's Day. Sure I appreciate being appreciated, but I don't ever feel unappreciated. And I definitely don't need a dedicated day every year to remind me how fortunate I am to be Gwendolyn's daddy. For me, every day Gwendolyn is with us is my...
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Getting Back To Normal

June 22, 2011 by Victoria Strong
I just want to thank everyone for being so supportive this last week. SMA is tough and while Bill and I always try to focus on what we can control and what we can do to make a difference, sometimes the reality of what we are facing becomes too much. I know it isn't easy to read. I know it isn't...
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Spinal Muscular Atrophy Power and Backup Power

June 20, 2011 by Bill Strong

In our experience, power and backup power for Gwendolyn's various life-critical machines can be -- well -- a pain in the neck and, when we haven't been prepared, extremely stressful and dangerous. We feel like we've encountered (or stumbled through) just about every power issue and emergency you...

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My Favorite Things With My Daddy By Gwendolyn Strong

June 19, 2011 by Victoria Strong

My Favorite Things With My Daddy

By Gwendolyn Strong, age 3 1/2 (translation assistance by Mommy)

My favorite things to do with my Daddy are

swinging on the swings

going on walks

reading books together

snuggling

dancing

hugs.

I love my Daddy.

Happy Father's Day to the best father in the entire universe!

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Having a hard time

June 16, 2011 by Victoria Strong

Having a hard time.

I don't know if it is the June gloom or if being in the hospital has messed with my mood, but I'm in a funk. And it's a low one. The reality of SMA is weighing heavily on my chest like a load of bricks and I'm having trouble catching my breath.

For such a long time we've...

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readgive rummage

June 14, 2011 by Victoria Strong
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Gwendolyn In Hospital But On The Mend

June 13, 2011 by Bill Strong
UPDATE: We are now home and Gwendolyn is doing well. She's still tired and we are still keeping a close eye on her, but she's rehydrated and glad to be in her own bed.

---

Don't panic, but we're in the hospital. It looks like Gwendolyn has the stomach flu. We didn't blog much last week because...

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8 Years.

June 07, 2011 by Victoria Strong
8 years ago today I married this wonderful, intelligent, amazing, and funny man...And 8 years later I think he's still wonderful, intelligent, amazing, and funny... even more so...and I love him.

And BONUS -- he gave me this wonderful, intelligent, amazing, and funny little girl!

(Crazy -- we've...
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