Blog Archive 05/2011

Blueberries, BBQ, and I Madonnari

May 31, 2011 by Victoria Strong
We had a wonderful weekend filled with friends, sunshine, and even some new adventures. On Friday we went to a friend's house for a play date. On Saturday we went blueberry picking at a charming farm. On Sunday we went to a BBQ at a friend's house. And on Monday we attended the I Madonnari Festival...
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Good Things For Gwendolyn: Being Like Her Friends - Reading, Climbing

May 27, 2011 by Victoria Strong
It has been an exciting week at school this week. Gwendolyn "climbed" a tree and this is now her favorite thing to do. She saw all the other big girls in the tree and looked at me with an expression that said, Mom, we are doing this. It took some navigating, but seeing her so determined I knew I...
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100 Miles For Owen. Stephen Taylor Running Western States 100 (Again)

May 27, 2011 by Victoria Strong

100 miles. 100 miles in 30 hours. 100 miles though the Sierra Nevada Mountains. 100 miles through extreme heat and even snow. Yep, that crazy Stephen Taylor is doing it again -- 100 miles for Owen! And we think he's incredible!

Held the last weekend of June in Northern California, the Western...

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Team Jenna Raises Over $1,200 and Races This Sunday

May 25, 2011 by Victoria Strong

Meet Jenna Boguhn. A spunky six-year-old who loves school, having painted nails, playing dress up, and being with her two older sisters. And while Jenna is so much like any other adorable six-year-old, Jenna has Spinal Muscular Atrophy. This Sunday, Renee Gronowski, Jenna's aunt, will be running...

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Buckaroo Girl

May 24, 2011 by Victoria Strong

Someone call the dude ranch. We've got a Buckaroo girl on our hands...

And, yes, the hat was all her idea. And, yes, she napped with it, too smile

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Rummage To Cure in Santa Barbara Raises $3,400 for The GSF

May 23, 2011 by Victoria Strong
Santa Barbara's Rummage To Cure was a HUGE success and Team Gwendolyn ROCKS! Yep, they are A-M-A-Z-I-N-G! And Saturday's sale was another example of their awesomeness. So many in the community got involved. So many made this a success. And we are so, so grateful. And... $3,400 was raised for The...
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Santa Barbara Rummage To Cure THIS Saturday!

May 19, 2011 by Victoria Strong

Santa Barbara --> Get your rummage on to help end SMA!!! Rummage To Cure is THIS Saturday and it is going to be AWESOME! Treasures - check. The Burger Bus - check. Yummy Mummy treats - check. Shop and eat and shop some more!

WHEN:

Saturday, May 21st

9:00 to 3:00

WHERE:

Trinity Episcopal Church

1500...

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Our Dancing Diva

May 18, 2011 by Victoria Strong
Gwendolyn loves music. She always has. Her favorite is to play music in the car (loudly and with the sunroof open) and to dance like crazy as we roll up to preschool or therapy. But she doesn't like any old song -- she likes a beat. She's so specific about her tunes that the radio DJ was...
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I’m Running the Santa Barbara Marathon

May 17, 2011 by Bill Strong

I've always wanted to run a marathon -- it's one of those goals I planned to "one day" check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just six-months-old.

I was at work. My...

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Good Things For Gwendolyn: A Slumber Party with Hayden

May 16, 2011 by Victoria Strong

Oh these two girls...they are just too much!Gwendolyn and Hayden just love each other and we were so excited to spend the weekend at Hayden's house -- a three day slumber party filled with fun, fun, fun!

The Calafiores live about four hours north of us in Central California. They are surrounded...

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