Blog Archive 04/2011

Easter 2011

April 29, 2011 by Bill Strong

What an awesome Easter! Easter egg decorating, playing, more playing. A Gramma slumber party. Easter egg hunting, Easter basket opening, more Easter basket opening, more Easter egg basket opening, more Easter basket opening. A beautiful walk to the park, a swing on the swings, a meeting with...

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Continuing the SMA Charge on Capitol Hill

April 27, 2011 by Bill Strong
Get ready -- a NEW SMA bill is on it's way and we will need YOUR help.

We've always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level.We've been big supporters...

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Spinal Muscular Atrophy Machines and Supplies

April 26, 2011 by Bill Strong

In our personal experience, getting your arms around life-critical machines and supplies can be daunting in the process of dealing with a spinal muscular atrophy diagnosis. What will we need? Where will get all this stuff? What do others use? How are we going to figure all of this out? We remember...

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GSF Mother’s Day Giveaway {Valued Over $400!}

April 25, 2011 by Victoria Strong
{UPDATE}

Thank you all for participating in the GSF Mother's Day Giveaway! We had so much fun and we hope you did, too! A big THANK YOU to the 10 fabulous vendors who contributed to this fantastic prize and who continually support the GSF and our mission to END SMA, the #1 genetic killer of young...

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Happy Easter.

April 24, 2011 by Bill Strong

My how our little bunny has grown and grown and grown and grown. A little walk down Easter memory lane [brought some healthy tears to these eyes] --Easter 2008Easter 2009Easter 2010.

We wish you all a happy, wonderful Easter!

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Swingin’

April 22, 2011 by Bill Strong
Gwendolyn LOVES to swing on the swings. I mean she a-b-s-o-l-u-t-e-l-y LOVES it. On our almost daily walks we pass several parks and one has a huge children's playground. There is no way we can get past that park these days without taking a swing on those swings -- which can be challenging if we're...
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Real Estate For A Cure Has Now Raised $7,500 For The GSF

April 21, 2011 by Victoria Strong
We are so excited! Real Estate For A Cure has officially raised $7,500 for the GSF!!!

Real Estate For A Cure was started by real estate team Kristen Kearns and Lucy Rhodes in Pennsylvania in honor of Sweet Baby Zane Schmid. We adore the Schmid family. They are the kind of people who see a need,...

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Our Little Spring Girl

April 20, 2011 by Bill Strong
Spring is definitely in the air around here -- and we're loving every second of it although the weather isn't quite sure which direction it wants to go quite yet. I just love this picture of Gwendolyn out with us at breakfast on the patio...
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Ninth Graders Host Spaghetti Banquet To End SMA and Raise Over $4,000

April 19, 2011 by Victoria Strong
Children helping children...it gets me every time! And I love it!

Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Strong Foundation! But these students didn't...

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Life Really Is Short: Cherishing My Special Daddy Days

April 18, 2011 by Bill Strong
The reality and gravity of Gwendolyn's SMA diagnosis three years ago has completely turned my personal balance sheet on its head. Things that used to be important, aren't so much any more. Priorities have shifted. Focus has become much more micro and patience for nearly everything outside of my...
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