Blog Archive 03/2011

Climbing Again for SMA

March 30, 2011 by Bill Strong

The inspiring Jadon's Hope and Jim Baker are at it again! And with them you know it's going to be something BIG. As ifclimbing the 23,000 foot Mt. Aconcagua and raising over $45,000 for GSF's "$200K For SMA" fundraising campaign wasn't impressive enough, Jim Baker will be tackling the famous Mt....

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A Good Laugh

March 29, 2011 by Victoria Strong
[caption id="attachment_5274" align="aligncenter" width="300" caption="Photog credit: YummyMummyKitchen.com"][/caption]

I need a good laugh. Don't we all? Having a good laugh just seems to help me refocus... look at things in a new way... let off steam. A good laugh makes my heart smile and I think...

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Rummage To Cure

March 28, 2011 by Victoria Strong

Gwendolyn's Gramma is a go-getter. She is practical and proactive and after Gwendolyn's SMA diagnosis she immediately went to work to raise funds and awareness for SMA. Her very first effort was what she named the "May Day to End SMA Sidewalk Sale" and with the help of lots of friends and family...

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Clever Little Girl

March 25, 2011 by Victoria Strong

Last night when I was putting Gwendolyn to bed I asked her, How did you get so darn adorable? She smiled and looked around her room. So I pointed to different decorations on her shelf and asked, Was it the angels who made you so adorable? Silence. Looking up at the stars on her ceiling, Was it the...

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Team Owen Trounces SMA in the New Bedford Half Marathon!

March 24, 2011 by Victoria Strong

We are officially moved beyond words. Team Owen Simmons and all the amazing running that took place this Sunday to help fight Spinal Muscular Atrophy was simply incredible!!! Incredible. There is something just so selfless and poignant about people using their physical strength for those who...

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A Mother’s Embrace…Gwendolyn Has a “Bug”

March 23, 2011 by Victoria Strong

This is what we did today.

What's more is Gwendolyn demanded it.

In her non-verbal way she let me know she needed snuggles. She needed to hear my heart beat in her ear. She needed my warmth. She needed my comfort. She needed her mother's embrace.

And then she fell asleep.

And I cried.

...
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Easter Bunny Must Have Goodies That Help End SMA

March 22, 2011 by Victoria Strong

Easter is hoppity hopping on its way and your Easter goodies can help end Spinal Muscular Atrophy. Adorable bunny goodness + raising SMA research dollars = perfection! Be sure to put your order in asap -- only one month until the Easter Bunny hops to your house!

My Bunny and Me has THE most darling...

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Killer B Fitness Goes the Extra Mile for SMA!

March 21, 2011 by Victoria Strong
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer B Fitness, planned the entire event and they...
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Preschool Photo Shoot and the Small Things

March 18, 2011 by Bill Strong

Yesterday, Gwendolyn had her preschool photo shoot. She took her class picture with all of her school friends and teachers. And then -- just like all of the other kids -- she excitedly took her posed solo shots sitting in her purple tumbleform chair in front of a cheesy faux windowsill setup smile...

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Happy St. Patrick’s Day 2011

March 17, 2011 by Bill Strong
Our sweet little leprechaun wants to wish you all a very happy St. Patrick's Day. Hope you are all wearing green today...otherwise watch out for Gwendolyn's sneaky pinchy pinchy smile And thank you Grandpa for sending Gwendolyn the cool St. Patrick's Day hat and ribbon. She loves them!
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