Blog Archive 03/2011
The inspiring Jadon's Hope and Jim Baker are at it again! And with them you know it's going to be something BIG. As ifclimbing the 23,000 foot Mt. Aconcagua and raising over $45,000 for GSF's "$200K For SMA" fundraising campaign wasn't impressive enough, Jim Baker will be tackling the famous Mt....Read More >>
I need a good laugh. Don't we all? Having a good laugh just seems to help me refocus... look at things in a new way... let off steam. A good laugh makes my heart smile and I think...Read More >>
Gwendolyn's Gramma is a go-getter. She is practical and proactive and after Gwendolyn's SMA diagnosis she immediately went to work to raise funds and awareness for SMA. Her very first effort was what she named the "May Day to End SMA Sidewalk Sale" and with the help of lots of friends and family...Read More >>
Last night when I was putting Gwendolyn to bed I asked her, How did you get so darn adorable? She smiled and looked around her room. So I pointed to different decorations on her shelf and asked, Was it the angels who made you so adorable? Silence. Looking up at the stars on her ceiling, Was it the...Read More >>
We are officially moved beyond words. Team Owen Simmons and all the amazing running that took place this Sunday to help fight Spinal Muscular Atrophy was simply incredible!!! Incredible. There is something just so selfless and poignant about people using their physical strength for those who...Read More >>
This is what we did today.
What's more is Gwendolyn demanded it.
In her non-verbal way she let me know she needed snuggles. She needed to hear my heart beat in her ear. She needed my warmth. She needed my comfort. She needed her mother's embrace.
And then she fell asleep.
And I cried.... Read More >>
Easter is hoppity hopping on its way and your Easter goodies can help end Spinal Muscular Atrophy. Adorable bunny goodness + raising SMA research dollars = perfection! Be sure to put your order in asap -- only one month until the Easter Bunny hops to your house!
My Bunny and Me has THE most darling...Read More >>
Yesterday, Gwendolyn had her preschool photo shoot. She took her class picture with all of her school friends and teachers. And then -- just like all of the other kids -- she excitedly took her posed solo shots sitting in her purple tumbleform chair in front of a cheesy faux windowsill setup ...Read More >>