Blog Archive 02/2011

Friends, Friends, and More Amazing Friends

February 28, 2011 by Victoria Strong
We have been spending lots of time with our wonderful friends. We've gone to visit, we've had visits, and we are loving every single minute!

I drove down to L.A. to spend the day with one of my dearest childhood friends, Theresa. Theresa is so creative (the puppy themed party, the Trike-A-Thon...

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Jewelry To End SMA

February 24, 2011 by Victoria Strong
Uber talented Barb Zahn has done it again. Writer and Artist - check. Etsy shop owner - check. Amazing mom who shaved her head and turned it into a $13,000 spinal muscular atrophy research fundraiser - check. And now, thanks to the super talented Kim Jakum of Metalmorphis, add jewelry designer to...
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Career Day

February 23, 2011 by Victoria Strong

Our little girl...oh our sweet little girl...expressed what she wants to be when she grows up!

It was "career day" at preschool -- a loose term (it's only preschool after all). But none-the-less there was talk of what the children want to be when they grow up. A simple enough question, but one...

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Good Things For Gwendolyn—Valentines

February 21, 2011 by Victoria Strong
I can't believe it has been a week since Valentine's Day and I haven't posted about the many, many good things. Bottom line -- Gwendolyn loved all of it!

Valentine Party. Our Valentine fun began with a party hosted by our friend Marina a few days before the official day. Marina is one of those...

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Getting Out With Gwendolyn…At Some Point, We Just Started Living

February 16, 2011 by Bill Strong

I wrote a blog post in February 2009 titled 25 Honest Things. At the time there was a Facebook "25 Things!" going around and, well, these were my 25 things. None of this has much to do with us getting out with Gwendolyn, but I vividly remember a comment to that post from an SMA mom with a...

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Indoor Triathlon Fundraiser at Killer B Fitness in Santa Barbara

February 15, 2011 by Victoria Strong
And so the fundraising continues! That's right, we aren't stopping and neither are our incredible supporters! So Santa Barbara -- get ready to go the extra mile with Killer B Fitness!

Our good friends Lisa and Bob Wilcher own Killer B Fitness in Santa Barbara. You may know Bob Wilcher from his...

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Sweet Valentine

February 14, 2011 by Victoria Strong
Won't you be my Valentine???
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New Awesome SMA Resouce: InsideSMA

February 13, 2011 by Victoria Strong

The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful. Everything from how to prepare for and...

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Good Things For Gwendolyn: Weekly Gramma Visits

February 11, 2011 by Bill Strong
Not unlike the connection I have with my Mom, Gwendolyn and her Gramma have an extremely unique and special bond, too. We've written about it before, but Gramma happily drives 80 miles each way from Los Angeles to Santa Barbara every week to spend time with Gwendolyn and help us out around the...
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2011 King of the Hammers - Go Uncle Richard and Aunt Kristen!

February 11, 2011 by Bill Strong

Driving to END SMA...one rock at a time!

There's this incredible off-road desert race called the King of the Hammers held in Johnson Valley, CA. If you are into this kind of thing, you know exactly what I am talking about. It's crazy. It's grueling. It's incredibly difficult to qualify for. 100...

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