Blog Archive 09/2010

Gwendolyn and SMA on NPR!

September 30, 2010 by Victoria Strong

We are beyond excited! NPR or National Public Radio's highly respectedCalifornia Report is airing an interview about Gwendolyn and spinal muscular atrophy (SMA) this Friday and Saturday! The segment will be aired statewide on Friday at 4:30pm PT on over 30 stations and again inSanta Barbara and...

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Samsung Helmet of Hope - Pure Inspiration, Tons of Awareness

September 30, 2010 by Victoria Strong

Whew! What. A. Race. smile

We're not sure how many times we bumped between the #1 and #2 spot over the last three weeks in this contest, but it was probably in the neighborhood of several times daily. A pretty exciting contest indeed! The Samsung Helmet of Hope was literally down to the wire yesterday...

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New York Diva Race for Gwendolyn

September 29, 2010 by Victoria Strong

On October 3rd, the day before Gwendolyn's birthday, the fabulous Lauren and the amazing Aunt Moe are teaming up to run the DIVA Half Marathon in honor of Little Miss Diva, Gwendolyn!

I know you know Lauren. She's only the most fabulous person ever. We love Lauren and we admire her dedication to...

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Last Two Days! Please Vote Again! Help GSF Win $20K!!!

September 28, 2010 by Victoria Strong

Did you vote for the Gwendolyn Strong Foundation to win $20,000 for SMA research in the Jimmie Johnson Samsung Helmet of Hope contest? Well, we need you to PLEASE VOTE AGAIN to get us over the finish line on Wednesday. The Samsung Helmet of Hope is a DAILY VOTE and it is a ridiculously tight race...

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Best Husband and Daddy…EVER!

September 28, 2010 by Victoria Strong

I have the best husband ever! And Gwendolyn has the best Daddy! I know, I know...I am completely and totally biased. But this weekend was so beyond wonderful because of him, his thoughtfulness, his sensitivity, his gratitude for his two girls and well, my heart is exploding with so much gratitude...

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Gwendolyn’s Birthday Bonanza Giveaway #3: My Bunny and Me

September 26, 2010 by Victoria Strong
Only one more week until Miss Gwendolyn's BIG 3rd birthday! We are so excited!!! And we are having so much fun sharing the celebration with all of you! I can't believe my little baby is almost THREE!!! 36 Months = 3 Years! Where has the time gone? And I know I've posted this video already, but I...
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Girl Scouts Honor Victoria: 2010 Woman of Distinction

September 25, 2010 by Bill Strong
Last Thursday evening, Victoria was honored by the Girl Scouts of the Central Coast as one of their 2010 Women of Distinction for her work with the Gwendolyn Strong Foundation (GSF) and SMA. Two extremely accomplished women were honored along with Victoria: Laura Benson, Vice President and Private...
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New York Times: Cap Lifts, and So Do Spirits

September 23, 2010 by Bill Strong

Anyone who knows us knows that raising broad awareness of SMA is something that we are pretty passionate about...just a wee bit. And. So. Well. We're pretty excited around here today. The New York Times ran a vignette on our family today about SMA and our perspective on the two pieces of the new...

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Busy, Busy, and Parties Galore

September 22, 2010 by Victoria Strong
We are busy - with a capital B. It is all wonderful, fabulous, really super positive stuff. But, we've got irons in just about every fire and it is keeping us on our toes.

In SMA news...there is, of course, the Helmet of Hope contest (please, please, please keep voting! Vote every day. $20,000 for...

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Gwendolyn’s Birthday Bonanza Giveaway #2: Bella Claire Baby Bloomers

September 19, 2010 by Victoria Strong
Drum roll please....the winner of the "Gwendolyn Necklace" by Cristina Ashley Designs is... Ann Walker! Ann is going to give her necklace to Molly, who lost her daughter, June, to SMA. We are so happy for her to win this and we know Molly will love it. Congratulations Ann! (Be sure to send me an...
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