Blog Archive 08/2010
We think it's time to stop...take a deep breath...take a step back...and reflect on a pretty extraordinary accomplishment by a very special group of passionate people.Think about this for a minute.Less than TWO months afterlaunching our "$200K For SMA" fundraising campaign in support of promising...Read More >>
We've been so busy working on the "$200K for SMA" campaign that we completely forgot to update about the other wonderful things that have been happening with Spinal Muscular Atrophy awareness and advocacy this month.
The State of California Declares August SMA Awareness Month --> This took a lot of...Read More >>
We want you to meet Mia Hultgen. Mia just turned 30. She's beautiful, accomplished, kind, and from all accounts a totally awesome person. Mia has SMA. SMA Type III. Doctor's told Mia and her parents that she would be lucky to survive to 18. And yet here she is...living, loving, and preparing to...Read More >>
We had so much fun visiting with my sister, brother-in-law, and nephews...and Grandpa came over, too. They are the best and there is nothing like laughing the night away with them. And Gwendolyn loves being read to, smothered with hugs and cuddles, kissed, tickled, and taken on fun adventures with...Read More >>
So excited for this Saturday! The 2010 Micah March is going to be an amazing evening! Over 175 people are expected!!! And we are going to have a blast!
For those of you who are walking don't forget to collect those sponsors and motivate your teams! And if you haven't signed up yet, you can still...Read More >>
You aren't going to believe the awesome adventure that is taking the SMA fight to a new height! A 22,840 foot height! Yes, that's right...mountain climbing!
You may remember gorgeous Jadon Burks from this post. Well his incredible parents, Tony and Kristin, and their wonderful mountain climbing...Read More >>
Gwendolyn has therapy every day -- on some days twice. The therapy ranges from stretching to play and sometimes a combination of the two, but all of it allows Gwendolyn to experience things she could not without the help of some very special people.
Therapy for SMA children is a challenge. It's not...Read More >>