Blog Archive 07/2010

National SMA Awareness Month Sweepstakes

July 31, 2010 by Victoria Strong
I was just getting ready to post about this amazing thing author Chris Finlan is doing and let folks know they can still participate in this awesome thing, when I got a call about his newest generous idea! August is National Spinal Muscular Atrophy Awareness Month and to kick things off, Chris...
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New Snuggly Friends

July 30, 2010 by Victoria Strong
We have quite a few new snuggly friends lately from different special people in our lives and Gwendolyn is enjoying each of them completely. Gwendolyn always names each new doll and she will not simply accept the first name we throw out...that is unless it strikes her fancy. And once a doll is...
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Special Visitor: The SMA Fighting DIVA!!!

July 29, 2010 by Victoria Strong

We had a very special visitor this week -- Ms. Lauren Lundy O'Connor aka SMA Getter aka Team Run For Owen aka Supreme Awesomeness!!! We adore Lauren! You may remember her from here or here. Or you may remember that in May Lauren ran the New Jersey Marathon in honor of Gwendolyn. Lauren is...

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ReadGive: Magazines For SMA

July 27, 2010 by Victoria Strong

We love companies who give back -- especially when they are things you would already buy. And we are loving ReadGive. ReadGive offers a large selection of magazines at competitive prices (and they are adding more each month) and with each subscription 40% will be directed to the Gwendolyn Strong...

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Gwendolyn’s AA Diet Update: New Movements

July 27, 2010 by Bill Strong
It's been a bit over a month since we started Gwendolyn on her new Amino Acid (AA) diet and everything has been going really, really well. We were pretty nervous about the switch, but Gwendolyn has not had any issues with the transition other than minor constipation in the very beginning. Since the...
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$200K for SMA: Over $50,000 Raised So Far

July 26, 2010 by Victoria Strong

Over $50,000 has been raised in the $200K for SMA campaign!!! Yes, over $50,000 -- $64,517 to be exact. It is so exciting! Take a look at each participant -- the power of the individual is amazing!!! There are many you have heard lots about and you can see the results of their awesome efforts....

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Real Estate for a Cure

July 23, 2010 by Victoria Strong

A few months ago Kristen Kearns (aka sweet baby Zane's aunt) reached out to us to tell us about the wonderfully generous fundraiser that she and her partner, Lucy Rhodes, were starting. Kristen and Lucy are realtors in Pennsylvania (Main Line area) and they decided that with each home sale, a...

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Fancy Gwendolyn

July 22, 2010 by Victoria Strong
Yes...I'm very glamorous with my fancy nails... and very proud of myself. smile And, yes, those are rhinestones...and a music note...and a butterfly...and glitter polish. Want me to paint yours?

Thanks Aunt Elizabeth for keeping me so sparkly! You are the best!!!
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SB Friends Save the Date: Micah March 5K on August 28th

July 21, 2010 by Victoria Strong

Okay Santa Barbara and Ventura area residents, it's time to mark your calendar for the 2010 Micah March 5K Walk. Many of you have asked if GSF would organize a walk...many of you have offered to help -- well, the wonderful Marshall family are at it again and have planned an awesome 5K walk in Ojai....

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Sweet, Small Victory: Handicap Sidewalk Ramps

July 20, 2010 by Bill Strong

We're celebrating a small, but very sweet victory in the Strong household. Back in December 2008, I posted about how inaccessible our neighborhood sidewalks are. I was pretty annoying about the whole thing with the City -- and then a little more annoying. Well persistence paid off! And while the...

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