Blog Archive 06/2010

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June 30, 2010 by Victoria Strong
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Song For A Cure: Angel (for Zane)

June 29, 2010 by Victoria Strong

Just over a year ago sweet baby Zane lost her battle to SMA. Zane was the beautiful 5 month old daughter of the inspiring Schmid family and she has had an enormous impact on the lives of countless people. At Zane's funeral, her uncle, a talented musician, was given the difficult task of...

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Gwendolyn’s New Food Regimen—The AA Diet

June 27, 2010 by Bill Strong
This week we started Gwendolyn on a new food regimen, the Amino Acid (AA) diet. This represents a pretty big shift for Gwendolyn and we are appropriately nervous. Any change is always worrisome, but we are also hopeful that the AA diet will benefit Gwendolyn's overall energy and health.

Gwendolyn...

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Summer Fun

June 25, 2010 by Victoria Strong

The summer has just begun, but we have already been having lots of fun.

We've been having picnics with friends.

We've been teaching our princesses to dance.

We've been swinging in our new swing.

We've been taking Abby Cadabby for strolls.

We've been relishing time with old friends.

We've been reading...

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Bathing Beauty

June 23, 2010 by Victoria Strong
Gwendolyn loves her bath. She gets so excited when we ask her if she's ready. It is definitely one of her favorite times of the day. She can move her arms and legs in the water. She gets to sing songs. She gets to play with her toys. And then when it is all finished, the artist arrives to coif her...
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Way to Go Stephen! Good Luck and Thank you!!!

June 22, 2010 by Victoria Strong

Tomorrow Stephen Taylor will fly from New Bedford, Massachusetts to Squaw Valley, California in the countdown to the Western States 100 Ultramarathon. That is 100 miles over rough terrain in a 24 hour period. It is insanity and incredible! And Stephen's motivation, selflessness, and perspective...

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SMA iPad Giveaway Winner

June 21, 2010 by Victoria Strong

And the winner is.....

Sydney -- 5 years old, SMA Type 1, from Michigan

Chessa -- 14 years old, SMA Type 2, from Georgia

Yes, that's right TWO people won the Apple iPad Giveaway!

We were so moved by the more than 100 entries that we simply couldn't stop at one iPad. Congratulations Sydney and Chessa --...

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Dear Daddy…

June 20, 2010 by Victoria Strong

Dear Daddy,

You are the best. No really...the cream of the crop. And you are all mine!

You always tell me how lucky you are to have me as your little girl -- well, I am so lucky to have you as my Daddy!

From the moment I was even just a thought, I became the most important focus of your life.

You were...

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GSF Awards $10,000 to SMAspace.com, a Critical SMA Online Support

June 18, 2010 by Bill Strong
Click HERE or on the picture below to read the full press release on this award.

We are very excited about awarding this $10,000 grant to help support and improve SMAspace.com. SMAspace is an incredibly unique and critical online community and resource for SMA families that was created by two...

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Makenzie’s Live, Laugh, Breathe Event—Only One Month Away

June 17, 2010 by Victoria Strong

Makenzie's Live, Laugh, Breathe Event is only ONE month away!!! Makenzie's day of celebration is flourishing and promises to be an incredible event. They just announced they will be raffling of a Nintendo Wii! They have an amazing entertainment line up. And check out this impressive list of event...

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