Blog Archive 06/2010
Just over a year ago sweet baby Zane lost her battle to SMA. Zane was the beautiful 5 month old daughter of the inspiring Schmid family and she has had an enormous impact on the lives of countless people. At Zane's funeral, her uncle, a talented musician, was given the difficult task of...Read More >>
Gwendolyn...Read More >>
The summer has just begun, but we have already been having lots of fun.
We've been having picnics with friends.
We've been teaching our princesses to dance.
We've been swinging in our new swing.
We've been taking Abby Cadabby for strolls.
We've been relishing time with old friends.
We've been reading...Read More >>
Tomorrow Stephen Taylor will fly from New Bedford, Massachusetts to Squaw Valley, California in the countdown to the Western States 100 Ultramarathon. That is 100 miles over rough terrain in a 24 hour period. It is insanity and incredible! And Stephen's motivation, selflessness, and perspective...Read More >>
And the winner is.....
Sydney -- 5 years old, SMA Type 1, from MichiganChessa -- 14 years old, SMA Type 2, from Georgia
We were so moved by the more than 100 entries that we simply couldn't stop at one iPad. Congratulations Sydney and Chessa --...Read More >>
You are the best. No really...the cream of the crop. And you are all mine!
You always tell me how lucky you are to have me as your little girl -- well, I am so lucky to have you as my Daddy!
From the moment I was even just a thought, I became the most important focus of your life.
You were...Read More >>
We are very excited about awarding this $10,000 grant to help support and improve SMAspace.com. SMAspace is an incredibly unique and critical online community and resource for SMA families that was created by two...Read More >>
Makenzie's Live, Laugh, Breathe Event is only ONE month away!!! Makenzie's day of celebration is flourishing and promises to be an incredible event. They just announced they will be raffling of a Nintendo Wii! They have an amazing entertainment line up. And check out this impressive list of event...Read More >>