Blog Archive 05/2010

SMAandNutrition.org: Calling All SMA Type I Families, We Need YOUR

May 28, 2010 by Bill Strong
I don't think anyone would argue that nutrition and proper dietary management is a critical component to any Spinal Muscular Atrophy (SMA) care philosophy. There are several options and points of view, but, unfortunately, to date there has yet to be any data driven scientific research to provide a...
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Long Legged Beauty

May 26, 2010 by Victoria Strong
Everyone always comments about how tall Gwendolyn is. And, yes, she is very tall. Bill and I are average height -- okay, I'm short. So it is always comical to us that Gwendolyn just seems to stretch and stretch and keep stretching. And her legs -- her long, lovely legs -- seem to go on forever. In...
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100 Miles For Owen: Clam Dinner and Car Wash

May 25, 2010 by Victoria Strong
100 Miles for Owen is jumping with action. Stephen Taylor who is running the Western States 100 Mile Ultra Marathon on June 26th is planning and inspiring all sorts of fun events in the Boston, Massachusetts area. We aren't quite sure where he finds the time to plan and organize all of this while...
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Change For Change

May 25, 2010 by Victoria Strong

This is a great idea that anyone can do -- anywhere. Let your spare change create real change for SMA!

Clean out the car, dig through old purses, look under the couch cushions, throw your extra change from purchases into a jar. Collect any coins that you find and at the end of each week, donate your...

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Team GSF: Meet David

May 24, 2010 by Victoria Strong
Team GSF has another incredible event coming up with another inspiring athlete: David Price. David and Bill went to USC together and when he learned of GSF through their mutual good friend, Matt Morse, David selected SMA as his cause to champion in his latest athletic challenge.David is...
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Abby Cadabby Dream Come True

May 21, 2010 by Victoria Strong

When we returned home after the Stanford trip, we received the most incredible surprise. And I mean, incredible! A dream come true for Gwendolyn. Unbeknownst to us, a friend of a friend was working on a little project for Gwendolyn (actually, a pretty darn BIG surprise in the world of an...

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GSF Awards $135,000, Partners On Promising Gene Therapy Program

May 20, 2010 by Victoria Strong

Gwendolyn Strong Foundation Awards $135,000, Partners On Promising Gene Therapy Program

We are so excited to announce the Gwendolyn Strong Foundation (GSF) has granted $135,000 to two promising cure focused SMA research programs. We have been working on these for months -- since a certain really...

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iPhone Photo Apps

May 19, 2010 by Victoria Strong
I'm obsessed. Totally and completely obsessed. I love the new iPhone photo apps and they've got me reinvigorated about documenting every second. Perhaps a little too much. I'm photographing everything -- mostly Gwendolyn. And the really neat thing is that Gwendolyn can use them, too. Check out the...
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Big Box Delight

May 18, 2010 by Victoria Strong
There are so many things that I plan to post about and just never get around to doing. One of those posts is how Bill and I spent our Valentine's Day this year -- at Sears. I know, romantic. But what WAS fun about buying a washing machine that day was seeing Gwendolyn experience a big store for the...
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Hope Calendar: GSF Selected as Beneficiary

May 17, 2010 by Victoria Strong

We are so excited -- the Gwendolyn Strong Foundation was just selected by the Hope Calendar as their charity for 2011. The Hope Calendar was started by Houston photographer, Debi Gomez, as an effort to give back to causes impacting children and, in the last three years, over $19,000 has been...

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