Blog Archive 04/2010
May Day To End SMA This SUNDAY
April 30, 2010 by Victoria The 2nd Annual May Day to End SMA is this Sunday!!! We are all so excited and it is sure to be a huge success thanks to the generous donations of so many people (THANK YOU!), the hard work of Gramma, Barbara & Owen (THANK YOU!), and the treasure hunting of YOU! Don't miss it. And don't forget to... Read More >>Run For Owen: Run For Gwen
April 30, 2010 by Victoria UPDATE: Lauren is running the New Jersey Marathon tomorrow, May 2nd! Please send her your support with a message on the Team Run For Owen website or the Fight For Owen Facebook fan page. Or you can still sponsor her race and help her reach her goal.Lauren, we are cheering you on from Cali and...
Read More >>Our Little Picasso
April 28, 2010 by Victoria Gwendolyn loves art -- especially coloring with markers and painting with watercolors and finger paint. Gramma usually brings a special art project every week. Lately they have been having lots of fun painting shapes and letters together...oh and stirring the brush in the water is lots of fun! Read More >>Team GSF: Meet Stephen
April 27, 2010 by Victoria Meet Stephen Taylor. Stephen is an incredibly inspiring guy who has enthusiastically joined Team GSF to raise funds for SMA research. On June 26th, Stephen is running the Western States 100 Ultra Marathon. The Western States 100 starts in Squaw Valley California and goes through the Sierra Nevadas... Read More >>Beb-e-ssentials Fundraiser & The Gwendolyn Butterfly
April 23, 2010 by Victoria
The butterfly in our logo is more than a design element. And while I have called Gwendolyn my little butterfly since she was a baby, it is more than that, too. Like a butterfly, SMA children have beautiful bright knowing spirits, but are delicate and fragile and confined in the cocoon of their...
Read More >>Recovering
April 23, 2010 by Victoria Gwendolyn is doing okay. Apart from worry and insomnia, we are recovering...but it has left us all in a fog. Bill is exhausted.Gwendolyn wants her bipap all the time, which seems more psychological than an actual breathing change. And I start something and completely forget what I am doing. We are... Read More >>Los Angeles Friends: PLEASE Contact Rep. Waxman ASAP
April 23, 2010 by Victoria It is extremely important that everyone call or email their representatives asking them to cosponsor the SMA Treatment Acceleration Act. but today it is especially critical that our Los Angeles friends tell Representative Henry Waxman that his support is needed.Representative Henry Waxman is key...
Read More >>Babysitter For Hire
April 21, 2010 by VictoriaOne 2 1/2 year old babysitter for hire with lots of experience. I give gentle snuggles, tickle toes, pat tiny baby bottoms, and know just how to put baby to sleep.
Gwendolyn LOVES babies! And I mean loves! She looks when she hears a baby cry, she wants to visit all of her friends' new baby...
Read More >>Call To Action: Help Pass SMA Bill
April 20, 2010 by Victoria Calling all SMA supporters! We need your help!As you know the SMA Treatment Acceleration Act is making its way through Congress. While the last few months have been focused on health care reform, our little SMA bill has been circling the desks of lots of Senators and Representatives. The good news...
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