Blog Archive 02/2010

Rare Disease Day

February 27, 2010 by Victoria

Tomorrow is "Rare Disease Day," the one day each February that the rare disease community comes together to raise awareness and celebrate our shared strength. NORD (National Organization for Rare Disorders -- a branch of the NIH) created this campaign to raise awareness of rare diseases as a public...

Final Two Days: $5,000 "Hero Next Door" Contest

February 25, 2010 by Victoria

Tomorrow, February 26th, is the LAST DAY to vote in the Hero Next Door contest. First, second and third place are all neck in neck, just a few votes between us. It is going to be down to the wire. And I am not throwing the towel in! I REFUSE!

Please, please take a few minutes today to help us reach...

Mommy & Gwendolyn

February 24, 2010 by Bill Strong

Just thought this was a sweet moment -- my girls cuddling...

Nothing Better Than Family

February 23, 2010 by Victoria

My super sister and nephews came to visit and anyone who knows me (or reads the blog) knows I hibernate when they arrive because I don't want to miss a second of the fun of being with them. And it was oh, so, so fun! We played princesses and knights, had tea parties, went to the zoo and the park,...

Chase Celebration Reception - You're Invited!

February 17, 2010 by Victoria

We are so, so, so excited to announce that this Saturday, February 20, JP Morgan Chase is hosting a celebratory Chase Community Giving reception at one of their Santa Barbara, California Chase branches for the Gwendolyn Strong Foundation and we would love for our wonderful supporters to attend....

Big Girl Salon Hair Cut

February 16, 2010 by Victoria

This weekend we took Gwendolyn to the big girl fancy salon that Mommy and Daddy go to, Walter Claudio Salon Spa, for her official second hair cut. The whole salon idea came from how much she loves "Daddy Salon" after her bath and that she was in bad need of a hair cut coupled with my stylist, Jen,...

2010 Winter Wine Fundraiser in Memory of Sweet Baby Zane, Malvern,

February 15, 2010 by Victoria

On March 7th, Hillary and Keith Schmid are hosting yet another amazing SMA fundraiser in the Philadelphia area. Since their daughter, Zane, was diagnosed with SMA, the Schmid family have organized and campaigned and fundraised with enormous passion and drive. They lost their sweet baby Zane, who...

Happy Valentine's Day!

February 14, 2010 by Bill Strong

Happy Valentine's Day everyone!

Cold Spring School GSF Talent Show Benefit

February 13, 2010 by Victoria

As you may remember, a local elementary school, Cold Spring School, adopted the Gwendolyn Strong Foundation as their charity of the year. The student council members have already passed out petition flyers, sold Axxess books, and have a "Feed the Piggy" campaign going in which they collect coins...

Hager & Dowling Foundation Grant

February 12, 2010 by Victoria

Last December we were stunned to learn a local law firm, Hager & Dowling, was considering the Gwendolyn Strong Foundation as a recipient of one of their yearly charitable grants through the Hager & Dowling Foundation. Our dear friend and GSF board member, Daalia Reynolds, was invited to present our...