Blog Archive 08/2009

Mr. & Mrs. B

August 30, 2009 by Victoria

Being with dear friends is one of our favorite things in the world! We just love... being with dear friends who can offer comfort and love and support by simply being... being with dear friends who go above and beyond to make our situation easier... being with dear friends who love us and our...

Park City Walk & Roll

August 30, 2009 by Victoria

While we were at the wedding, over in Utah several amazing folks walked and rolled for a cure in Gwendolyn's honor. Kelli even had these great Unite For The Cure T-shirts made! Words don't even begin to express our gratitude!!! You guys are awesome!!!

"Welcome Dinner": Los Olivos, CA - August 28, 2009

August 29, 2009 by Bill Strong

Our little princess had such a blast mingling at the "Welcome Dinner" in Los Olivos, CA last night. Today, it's wedding time! What a fun weekend we are all having...

Busy, Busy, Busy…

August 27, 2009 by Victoria

We are busy...busy, busy, busy. On top of new casts, teething molars, entering into fall and the worry of the flu and the dreaded swine flu and what that means for Gwendolyn's life, we are both working around the clock and are pouring our hearts into Unite For The Cure. In fact, we are starting to...

Serial Casting Success and City Proclamations

August 25, 2009 by Bill Strong

All in a day's work for our little fighter Gwendolyn...

This morning we took Gwendolyn to see her orthopedist, Dr. Early, to have her serial casting performed. Victoria and I were nervous for her, but Gwendolyn was a trooper as usual -- she actually smiled at Dr. Early through almost the entire...

Serial Casting

August 24, 2009 by Bill Strong

Tomorrow, we will be taking Gwendolyn for serial casting. No, we're not exactly happy about it, but it is necessary and will lead to more good, adventurous, fun stuff for our little fighter Gwendolyn. Serial casting is a noninvasive procedure where Gwendolyn's Orthopedist, Dr. Sean Early, will put...

Unite For The Cure: Take a look at what's going on over here!

August 24, 2009 by Bill Strong

If you haven't done so recently, take a stroll over to UniteForTheCure.com to see what's going on! We are so excited that 11 inspiring "Uniters" are already on board and we'll be announcing additional families soon...

We started Unite For The Cure to motivate the SMA community to band together to...

Mr. Seagull, I'm Watching You!

August 22, 2009 by Bill Strong

What a wonderful Saturday it turned out to be, even though we spent most of the day waiting for it to clear up (life-critical machines and rain don't mix). We're having some strange August weather here in Santa Barbara. For the last few weeks it's been cooler than normal and overcast -- we're used...

Sponsor-A-Mile Raises $44k, awareness of SMA

August 22, 2009 by Bill Strong

When it was all said and done, we drove 4,816 miles round trip in an RV from Santa Barbara, CA to Vicksburg, MS and back. We had a blast, blew through a ton of diesel gas, and are very proud of all that was accomplished through our Sponsor-A-Mile awareness and fundraising campaign for SMA. We ended...

"Tweet For A Cure" Tops 2,000 Tweets To Date, Reaches 1.4

August 21, 2009 by Bill Strong

In a little over two weeks since we launched "Tweet For A Cure", over 2,000 people have Tweeted their Congresspeople about the importance of the SMA Treatment Acceleration Act of 2009 and through those 2,000 people our SMA awareness message has reached nearly 1.4 Million Twitter followers - yes,...