Blog Archive 06/2009

KEYT-3 (ABC) Santa Barbara, CA story aired 6/17/09

June 17, 2009 by Bill Strong

Check out the story KEYT-3 (ABC) in Santa Barbara, CA aired on Gwendolyn and SponsorAMile.com. Thank you to Mike Klan and his crew from KEYT for pulling this story together and helping us raise much needed awareness about SMA!

Welcome Aboard CARE2.com; Donations Top $25,000!

June 15, 2009 by Bill Strong

We got some fantastic last minute news today. CARE2.com, the company that hosts our petition - PetitionToCureSMA.com - and has been so supportive of all of our cause efforts over the last year, has joined our "Sponsor-A-Mile To End SMA!" campaign as a corporate sponsor. Welcome aboard CARE2.com and...

Girls Weekend

June 14, 2009 by Victoria

We had a big weekend! For the first time since Gwendolyn's SMA diagnosis, it was just us girls. It was Nick's bachelor party (Bill's best friend) and Bill really wanted to be there. So over the last few months we have been talking about Bill going away and I have encouraged him that I would be...

Sponsor-A-Mile Update

June 12, 2009 by Bill Strong

10 days after officially launching "Sponsor-A-Mile To End SMA!", we've raised over $19,000 from over 185 sponsors and we'd like to stop, take a deep breath, and say a touched and humbled THANK YOU to each and every single one of you! You are truly amazing!

When we made the decision to drive 5,000...

Be the Match Marrowthon

June 11, 2009 by Victoria

A couple of months ago, Bill and I participated in our local Be the Match Marrow Registry drive. It was so, so easy to register (a little cheek swab) and Bill and I left feeling so glad to be part of something so important. I can only imagine what it would be like if Gwendolyn's life could be...

Melancholy

June 11, 2009 by Victoria

I feel a bit melancholy today. I don't know why. I don't have any reason to be -- well, no extra reason. I just woke up in a bit of a funk and I find myself needing extra snuggles and hugs from Gwendolyn, watching her as she naps, wanting to take in all of her sweet sleeping snores, her soft skin....

Gwendolyn Rocking Out!

June 09, 2009 by Victoria

Gwendolyn is really getting the hang of presents! After being a bit fussy with Mom and Dad (teething!), we asked if she would like to open a present from Great Uncle John and Great Aunty Clare. Her grumpy fussy sound immediately stopped as she eyed the pretty package and a smile (that was nowhere...

Hear Ye, Hear Ye…Presenting Princess Gwendolyn

June 08, 2009 by Victoria

Yes, Lady Gwendolyn is now an official Princess and she could not be more excited! After opening this wonderful present yesterday from her special Aunt and Uncle and cousins in Philadelphia, Gwendolyn LOVED looking at herself in the mirror wearing her crown and the tutu skirt. I was only allowed...

Happy Anniversary!

June 07, 2009 by Victoria

Six years ago today, Bill and I said our "I do's." Six years ago, on June 7th, we celebrated the start of our marriage. It was a beautiful day and seems like just yesterday. Six years goes by quickly...

Wine Country

June 06, 2009 by Victoria

We had a big day of wine tasting in the Santa Barbara wine country today to celebrate the birthday of our good friend, Mike. Yes, Gwendolyn got to go (with Big Bird and Abby in tow) -- and yes, that is legal