Blog Archive 02/2009

Fight "tears" with "tears"

February 20, 2009 by Bill Strong

This afternoon I was getting Gwendolyn ready for a walk and she was
getting a little restless. So, she did what every baby would do -- she
started "crying". You know the one; the fake one. So, I started
"crying" also. And Gwendolyn absolutely cracked up -- immediately. And
so, Victoria and I...

Just A Petition

February 19, 2009 by Victoria

I think, perhaps, I am obsessed. No, I know I am. Each day I check the petition, multiple times a day actually. I read the comments people write and the places they are from. I look for patterns to see what outreach efforts have worked. I think about how to reach more people, how to gain more...

BIG Girl

February 18, 2009 by Victoria

Gwendolyn officially graduated from baby "Swaddler" diapers to "Cruisers." She is very curious about her new purple "Big Girl" diapers and stares at them with a mixture of seriousness met by joy -- I think it is pride. Yes, our little baby is getting so big and she knows it. She loves to be Mommy's...

5 ways you can help us reach 100,000 PetitionToCureSMA.com signatures

February 17, 2009 by Bill Strong

50,000 signatures in support of SMA research is remarkable, but to reach 100,000 we need YOU! Here are 5 ways that you can help us get the SMA Treatment Acceleration Act passed this 111th Congressional session:

Household check. Make sure that your spouse or others in your household have also signed...

Supportive Friends

February 16, 2009 by Bill Strong

Our friends Wade, Heather, and adorable baby Reagan of Las
Vegas just had these cupcakes delivered from our favorite cupcakery. We are
so very lucky to have such supportive friends!!! Look at the 50,000 they had written out -- so AWESOME! We love you guys.

A great Sunday

February 16, 2009 by Bill Strong

On Sunday, Gramma, Aunt Kristen, and Uncle Richard came up to celebrate Gramma's birthday. It was supposed to be raining, but the weather held off for us and we were able to take a beautiful walk down to one of our favorite restaurants, Elements, for brunch. Gwendolyn slept through most of that,...

G-tube infected; back on Keflex

February 15, 2009 by Bill Strong

Several days ago, after we changed Gwendolyn's g-tube, we started
noticing the early signs of an infection around her g-tube site - most
importantly is that it is extremely sensitive to the touch for her :
( So, today we started her on an antibiotic called Keflex. She took
Keflex for a similar...

Happy Valentine's Day!

February 15, 2009 by Bill Strong

With love,

Gwendolyn

50,000 People Support SMA Research

February 13, 2009 by Victoria

Thank you John Kramer of Ohio -- You are the 50,000th person to sign
Petition To Cure SMA. And thank you to all 50,000 people who have supported this effort. You have made a difference.

With your help we can reach our new goal...