Blog Archive 09/2008

Sunday goodnight…

September 29, 2008 by Bill Strong

Gwendolyn fell asleep tonight holding hands with "baby" that one of
the social workers gave her months ago while in the hospital at
Stanford. Melts my heart...

We're a little concerned. This weekend she has definitely been
struggling more than usual while off of bi-pap. Hopefully it's just an...

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Simple family outing…

September 28, 2008 by Bill Strong
It's amazing what a simple family outing can do for the spirit. Nothing special - at all. We took the GVan to the mall to look for an outfit for Gwendolyn's first birthday and then went out to the nursery to get some ideas for our garden. It was just really, really nice to be out and about as a...
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Looking Back and Family Flu Shots

September 26, 2008 by Victoria Strong
Yesterday we went to see Gwendolyn's pediatrician, Dr. David Abbott, for a check up, check in, and family flu shots. We haven't seen him in almost two months -- a huge time lapse in our world considering there were months that we saw him every week -- some times every few days. Thinking of that...
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Petition Event—PEP parents ROCK!

September 24, 2008 by Victoria Strong
Over the weekend the amazing mothers and fathers from PEP gathered together again to rally further support for Petition to Cure SMA. They managed to organize and orchestrate a booth at the Cottage Hospital Baby Fair and spent their Saturday campaigning, all while juggling careers and parenting...
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Walk to the park—solo

September 22, 2008 by Bill Strong

Victoria was running some errands today, so instead of hanging out at
home I decided to enjoy the beautiful day and take Gwendolyn for a
walk. With the production to get out of the house, etc. this is the
first solo walk that I have taken her on since her diagnosis and I'm
pretty proud of myself...
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Disney Playhouse Live at the Granada

September 22, 2008 by Bill Strong

Today we went to the Granada Theater with GrandPa to see the live
rendition of Disney Playhouse. I'm proud of us as there were many good
reasons we could have used to convince ourselves not to go. But we
rallied our courage and we all had a blast -- most importantly
Gwendolyn. She absolutely loves...
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Tinkerbell balloon

September 21, 2008 by Bill Strong

This may be the coolest balloon ever. That's right, a larger than
fantasy size Tinkerbell. Thank you GrandPa!
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Sitting up

September 18, 2008 by Bill Strong

Last time we met with Dr. Wang he mentioned having us start slowly
getting Gwendolyn used to sitting in elevated positions to give her
the best chance of being physically able to be upright if she is
strong enough to use a wheelchair down the road. We have been holding
her up in our arms for months...
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Sunday stroll on the coast

September 16, 2008 by Bill Strong

We piled into the GVan on Sunday and took a stroll along the
coastline. It's so much easier now that we broke down and got a mini-
van. Gwendolyn slept in her stroller most of the walk, but she loved
feeling the wind in her hair once she woke up.

One thing kind of funny that we've noticed is that she...

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20,000 PetitionToCureSMA.com signatures and counting…

September 15, 2008 by Bill Strong


Today, nearly two months to the day after launching PetitionToCureSMA.com, we received our 20,000th signature! With your help, we have attained this milestone and Congress is paying attention. In that short time, 18 new Representatives and 4 new Senators have officially signed on to consponsor the...
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