Blog Archive 09/2008

Our Brave Girl

September 30, 2008 by Victoria

While Mommy and Daddy were a basket of nerves, this is Gwendolyn today thoroughly enjoying her time at the doctor because she got some new stickers!!! She is our brave, brave girl.

Gwendolyn is sleeping peacefully tonight and rightfully so after a very long, stressful day. After speaking with our doctors today about her struggles off bi-pap and through her cough assist treatments over the last few days, they were very concerned about her possibly coming down with an infection...

Sunday goodnight…

September 28, 2008 by Bill Strong

Gwendolyn fell asleep tonight holding hands with "baby" that one of
the social workers gave her months ago while in the hospital at
Stanford. Melts my heart...

We're a little concerned. This weekend she has definitely been
struggling more than usual while off of bi-pap. Hopefully it's just an...

Simple family outing…

September 28, 2008 by Bill Strong

It's amazing what a simple family outing can do for the spirit. Nothing special - at all. We took the GVan to the mall to look for an outfit for Gwendolyn's first birthday and then went out to the nursery to get some ideas for our garden. It was just really, really nice to be out and about as a...

Looking Back and Family Flu Shots

September 25, 2008 by Victoria

Yesterday we went to see Gwendolyn's pediatrician, Dr. David Abbott, for a check up, check in, and family flu shots. We haven't seen him in almost two months -- a huge time lapse in our world considering there were months that we saw him every week -- some times every few days. Thinking of that...

Petition Event—PEP parents ROCK!

September 23, 2008 by Victoria

Over the weekend the amazing mothers and fathers from PEP gathered together again to rally further support for Petition to Cure SMA. They managed to organize and orchestrate a booth at the Cottage Hospital Baby Fair and spent their Saturday campaigning, all while juggling careers and parenting...

Walk to the park—solo

September 22, 2008 by Bill Strong

Victoria was running some errands today, so instead of hanging out at
home I decided to enjoy the beautiful day and take Gwendolyn for a
walk. With the production to get out of the house, etc. this is the
first solo walk that I have taken her on since her diagnosis and I'm
pretty proud of myself...

Disney Playhouse Live at the Granada

September 21, 2008 by Bill Strong

Today we went to the Granada Theater with GrandPa to see the live
rendition of Disney Playhouse. I'm proud of us as there were many good
reasons we could have used to convince ourselves not to go. But we
rallied our courage and we all had a blast -- most importantly
Gwendolyn. She absolutely loves...

Tinkerbell balloon

September 20, 2008 by Bill Strong

This may be the coolest balloon ever. That's right, a larger than
fantasy size Tinkerbell. Thank you GrandPa!

Sitting up

September 18, 2008 by Bill Strong

Last time we met with Dr. Wang he mentioned having us start slowly
getting Gwendolyn used to sitting in elevated positions to give her
the best chance of being physically able to be upright if she is
strong enough to use a wheelchair down the road. We have been holding
her up in our arms for months...