Blog

Team OWEN raises $100,000!

March 20, 2014 by Victoria
Team OWEN raises $100,000!

Four years ago, what started as a friend turning his endurance run into an opportunity to raise funding for the SMA cause in Owen's memory has now turned into a community, a TEAM! And They Are Incredible. In four years $100,000 has been raised. A city's half marathon has turned into an SMA event....

Read More >>

Family of Four Photos

March 12, 2014 by Victoria

Gwendolyn is doing really well overall but is still recovering at home. We had a little outing to lunch this weekend and plan to continue venturing out but it is slow baby steps as she regains her full energy. The big highlight of our week was taking professional family photos -- lots of them...

Read More >>

Team OWEN is Incredible

March 09, 2014 by Victoria

This boy. 23 months old -- forever. Has helped to change the very disease that took his life.  

Read More >>

Courage in the Face of Grief and Fear

March 03, 2014 by Victoria

 

Navigating through grief and fear and finding a way to accept that we will lose our incredible child ironically has helped us live more presently and more freely. You can disappear in the overwhelming grief, be resentful of the path you must walk, or you can live in the now and truly cherish...

Read More >>

Gratitude

March 02, 2014 by Victoria

We have been doing a lot of this -- sister cuddles, family naps, hunkering down and resting. Gwendolyn is doing remarkably well. She is still weak and tired and will be for some time as her body recovers from the stress of the last 18 days in the hospital -- we all are. But we are so filled...

Read More >>

Popular Posts

Tags

Archive

2014
July (3)
May (1)
April (1)
March (5)
February (2)
January (2)
2013
December (2)
November (3)
October (3)
September (3)
August (4)
July (2)
June (4)
May (3)
April (4)
March (3)
February (5)
January (5)
2012
December (3)
November (8)
October (4)
September (5)
August (8)
July (7)
June (8)
May (8)
April (9)
March (7)
February (9)
January (9)
2011
December (9)
November (16)
October (15)
September (14)
August (15)
July (16)
June (13)
May (27)
April (22)
March (21)
February (20)
January (21)
2010
December (19)
November (22)
October (16)
September (23)
August (23)
July (27)
June (24)
May (24)
April (21)
March (26)
February (19)
January (24)
2009
December (21)
November (20)
October (32)
September (25)
August (25)
July (47)
June (44)
May (34)
April (27)
March (35)
February (35)
January (35)
2008
December (37)
November (22)
October (31)
September (20)
August (30)
July (27)
June (18)
May (5)
April (6)
March (3)
February (1)
January (2)
2007
December (7)
October (1)