Children experience deep grief - just like adults. They don't always have the emotional tools to process it all or even express what they are feeling (and let's be honest, adults often don't either). But what I've found is that children really need permission to grieve. Adults can be afraid of...Read More >>
We're excited to announce Dr. Erkan Osman of the University of Missouri as the 2015 $62,500 Finalist grantee for the Emerging Investigator Award (EIA). The EIA is an annual recognition established by the Gwendolyn Strong Foundation and FightSMA.Read More >>
This weekend we took new family photos. I'm not going to lie, we felt anxious about them - our first family pictures without Gwendolyn. But we wanted to commemorate Eleanora's birthday and we knew we needed to push ourselves to do with Eleanora the things we did when Gwendolyn was her age.... Read More >>
This week our little Eleanora turns two. TWO.
Two years go so quickly. Six months does as well.
Many have asked how Eleanora is doing since Gwendolyn passed away. The short answer is...Read More >>
We posted these things on social media over the last few weeks. The holidays have been very hard this year - though there has been gratitude in them and some meaningful signs from our special girl too. I want to post our thoughts here to remember how we processed our grief or worked at finding...Read More >>