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Autonomic Storms

July 10, 2014 by Victoria

We have been doing a lot of this after our trip up to Stanford this week. Gwendolyn deserved some relaxation -- we all did. So a few days swimming in Carmel is just what the doctor ordered. Our Stanford visit did bring some possible answers -- though not great news. 

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Mothering Two

May 12, 2014 by Victoria

I am the mother of two. I can hardly believe this myself. Celebrating yesterday with my two gorgeous girls was more than I could have dreamed. Before choosing to have another child, I knew to juggle the needs of two I would have to do some major letting go of many of the tasks that I felt...

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Announcing Our 2014 Emerging Investigator Awards SMA Research Grantees

April 10, 2014 by Bill Strong

We are extremely excited and proud to announce our 2014 Emerging Investigator Awards grantees: Barrington Burnett, Ph.D., Uniformed Services University of the Health Sciences, Sara Custer, Ph.D., Indiana University School of Medicine, and Faraz Farooq, Ph.D., Children’s Hospital of Eastern...

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Team OWEN raises $100,000!

March 20, 2014 by Victoria
Team OWEN raises $100,000!

Four years ago, what started as a friend turning his endurance run into an opportunity to raise funding for the SMA cause in Owen's memory has now turned into a community, a TEAM! And They Are Incredible. In four years $100,000 has been raised. A city's half marathon has turned into an SMA event....

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Family of Four Photos

March 12, 2014 by Victoria

Gwendolyn is doing really well overall but is still recovering at home. We had a little outing to lunch this weekend and plan to continue venturing out but it is slow baby steps as she regains her full energy. The big highlight of our week was taking professional family photos -- lots of them...

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