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Gratitude

March 02, 2014 by Victoria

We have been doing a lot of this -- sister cuddles, family naps, hunkering down and resting. Gwendolyn is doing remarkably well. She is still weak and tired and will be for some time as her body recovers from the stress of the last 18 days in the hospital -- we all are. But we are so filled...

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Gwendolyn Has A Collapsed Lung

February 16, 2014 by Victoria
Gwendolyn Has A Collapsed Lung

Gwendolyn is in the hospital with a collapsed lung. There are still a lot of unanswered questions, we are waiting for results from a whole new group of tests to try to determine what type of infection she has, and we are taking things day by day. We are seeing some improvements and feel...

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Gwendolyn Gives A Speech

February 05, 2014 by Victoria
Gwendolyn Gives A Speech

Gwendolyn gave a speech today! Yes, a speech -- to her whole class. Our determined, brave, resilient little girl is so proud to speak and share her thoughts and personality. And she should be. With the help of Say Hi! AAC her world just got a little bit bigger. Knowing that Gwendolyn wants so...

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Gwendolyn Becomes a Big Sister

January 20, 2014 by Victoria

The last 24 hours have been magical. We are all filled with such gratitude and love for our new family of four. And Gwendolyn said meeting her little sister was, "The BEST day ever!"

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Announcing the Two 2013 Emerging Investigator Awards Finalist Grantees

January 15, 2014 by Bill Strong

We are extremely excited to announce the two Finalist Grantees for the 2013 "FightSMA/Gwendolyn Strong Foundation Emerging Investigator Awards" program! Dr. Lyndsay Murray of Ottawa Hospital Research Institute and Dr. Constantin d'Ydewalle of Johns Hopkins School of Medicine.

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