Blog

Gwendolyn Strong, October 4 - July 25: Trying To Make Sense of Our Loss

July 26, 2015 by Victoria

Yesterday morning our courageous butterfly peacefully left this world. In her 7 years and 9 months, Gwendolyn taught us more than we could have ever imagined possible for a child. She was wise, she was true to herself, and she showed us how to be brave. We are devastated but comforted that her...

Read More >>

Hoping For A Better Tomorrow

July 23, 2015 by Victoria

Gwendolyn isn't doing well.

She's not sick. But she's struggling. Her energy is low. Her anxiety is high. Her body is tired.

We are tired. We are scared. But we are hopeful.

Grief has become so much part of our life that it has become a familiar acquaintance. Though not one we welcome...

Read More >>

Inclusion: Gwendolyn Soars Through Second Grade With Her Incredible Team

June 10, 2015 by Victoria

Every loving parent longs to see their child flourish and be inspired to excel. Gwendolyn's team so clearly inspires her to soar. She has not only risen to the occasion, she is sailing far beyond expectation, taking everyone along on this incredible joy-filled ride. And we are beyond grateful....

Read More >>

Marymount Sixth Graders Raise $11,000 for the Gwendolyn Strong Foundation

June 04, 2015 by Victoria

$11,000! Raised by SIXTH GRADERS! Absolutely AMAZING! We are so honored Marymount of Santa Barbara selected the Gwendolyn Strong Foundation as their Charity of the Year. We have been so inspired by the young Marymount philanthropists and their commitment to give back. And we are so grateful...

Read More >>

Saving Gwendolyn’s Life—Even at Disneyland

May 03, 2015 by Victoria

What started as a typical fun day this week at Disneyland turned very scary, very quickly. We nearly lost Gwendolyn this time. Every SMA Type 1 family walks this tenuous line between life and death every single day. The margin for error is hairline slim and the most subtle things can cause...

Read More >>

Popular Posts

Tags

Archive

2015
August (4)
July (3)
June (2)
May (1)
April (2)
January (4)
2014
November (3)
October (3)
September (3)
August (3)
July (3)
May (1)
April (1)
March (5)
February (2)
January (2)
2013
December (2)
November (3)
October (3)
September (3)
August (4)
July (2)
June (4)
May (3)
April (4)
March (3)
February (5)
January (5)
2012
December (3)
November (8)
October (4)
September (5)
August (8)
July (7)
June (7)
May (9)
April (9)
March (7)
February (8)
January (10)
2011
December (8)
November (16)
October (16)
September (14)
August (15)
July (16)
June (13)
May (27)
April (22)
March (21)
February (20)
January (21)
2010
December (19)
November (22)
October (16)
September (23)
August (22)
July (28)
June (22)
May (24)
April (23)
March (26)
February (19)
January (24)
2009
December (19)
November (22)
October (32)
September (25)
August (25)
July (45)
June (45)
May (35)
April (26)
March (35)
February (34)
January (36)
2008
December (38)
November (21)
October (30)
September (22)
August (30)
July (27)
June (18)
May (5)
April (6)
March (3)
February (1)
January (2)
2007
December (7)
October (1)