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Lenn’s Shave That Beard Fundraiser

September 09, 2014 by Victoria

We LOVE creative fundraisers! This is Lenn -- a beard-loving man. But he loves his sons, Owen and Landry, even more. The Johnson family challenged their friends to help them raise $1,000 for SMA research -- and if they did, Lenn would shave that beard. To Lenn's surprise, the goal was blown...

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Dear Special Needs Parent: Acknowledge Your Child’s Differences

August 25, 2014 by Victoria

Dear Special Needs Parent, It is that time of year -- Back To School. A time of new beginnings, excitement, and, for the special needs parent, major nervousness. Do yourself a favor -- acknowledge your child's differences. It will help them fit in. 

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Special Needs School Letter

August 23, 2014 by Victoria
Special Needs School Letter

This is a letter we share with the parents at Gwendolyn's school at the beginning of each year. The purpose of this letter is, of course, to teach about Gwendolyn and her special needs. But, it is also to simply introduce inclusive language. Most parents want to be embracing and want to raise...

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Gwendolyn Goes Surfing

August 22, 2014 by Victoria
Gwendolyn Goes Surfing

Gwendolyn went surfing! Yes, surfing. And it was absolutely incredible! Afterwards we asked Gwendolyn how she felt and she said "adventurous!" Yes, our sweet butterfly, you are definitely adventurous! And, once again, you have taught us to quiet our worries and get out there, try new things, and...

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Six Month Gratitude

July 27, 2014 by Victoria

Little Miss Eleanora just turned six months old. How quickly time is moving and in our house the six month milestone is a pretty darn big thing. Six months is a blessing. A milestone most recognize as just a step closer to the big one year mark. But six months in the SMA world is something...

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