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Announcing our 2015 Emerging Investigator Awards $62,500 Finalist Grantee

January 28, 2016 by Bill Strong

We're excited to announce Dr. Erkan Osman of the University of Missouri as the 2015 $62,500 Finalist grantee for the Emerging Investigator Award (EIA). The EIA is an annual recognition established by the Gwendolyn Strong Foundation and FightSMA.

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Kindness Matters: Kacie Jean Photography

January 27, 2016 by Victoria Strong

This weekend we took new family photos. I'm not going to lie, we felt anxious about them - our first family pictures without Gwendolyn. But we wanted to commemorate Eleanora's birthday and we knew we needed to push ourselves to do with Eleanora the things we did when Gwendolyn was her age.

...
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Little Sister Turns Two

January 17, 2016 by Victoria Strong

This week our little Eleanora turns two. TWO. 

Two years go so quickly. Six months does as well.

Many have asked how Eleanora is doing since Gwendolyn passed away. The short answer is...

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2015 Holidays

January 03, 2016 by Victoria Strong

We posted these things on social media over the last few weeks. The holidays have been very hard this year - though there has been gratitude in them and some meaningful signs from our special girl too. I want to post our thoughts here to remember how we processed our grief or worked at finding...

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Taking a Pass on Christmas

December 20, 2015 by Victoria Strong

This sweet little face. These bright piercing eyes. Those delicate little hands reaching out to touch and feel the world.

I'm struggling right now. I knew the holidays would be hard and that grief would ebb and flow. But it is flowing fiercely and I'm suffocating in this season. I don't feel...

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