Blog

Announcing Our 2014 Emerging Investigator Awards SMA Research Grantees

April 10, 2014 by Bill Strong

We are extremely excited and proud to announce our 2014 Emerging Investigator Awards grantees: Barrington Burnett, Ph.D., Uniformed Services University of the Health Sciences, Sara Custer, Ph.D., Indiana University School of Medicine, and Faraz Farooq, Ph.D., Children’s Hospital of Eastern...

Read More >>

Team OWEN raises $100,000!

March 20, 2014 by Victoria
Team OWEN raises $100,000!

Four years ago, what started as a friend turning his endurance run into an opportunity to raise funding for the SMA cause in Owen's memory has now turned into a community, a TEAM! And They Are Incredible. In four years $100,000 has been raised. A city's half marathon has turned into an SMA event....

Read More >>

Family of Four Photos

March 12, 2014 by Victoria

Gwendolyn is doing really well overall but is still recovering at home. We had a little outing to lunch this weekend and plan to continue venturing out but it is slow baby steps as she regains her full energy. The big highlight of our week was taking professional family photos -- lots of them...

Read More >>

Team OWEN is Incredible

March 09, 2014 by Victoria

This boy. 23 months old -- forever. Has helped to change the very disease that took his life.  

Read More >>

Courage in the Face of Grief and Fear

March 03, 2014 by Victoria

 

Navigating through grief and fear and finding a way to accept that we will lose our incredible child ironically has helped us live more presently and more freely. You can disappear in the overwhelming grief, be resentful of the path you must walk, or you can live in the now and truly cherish...

Read More >>

Popular Posts

Tags

Archive

2014
April (1)
March (5)
February (2)
January (2)
2013
December (2)
November (3)
October (3)
September (3)
August (4)
July (2)
June (4)
May (3)
April (4)
March (3)
February (5)
January (5)
2012
December (3)
November (8)
October (4)
September (5)
August (8)
July (7)
June (8)
May (8)
April (9)
March (7)
February (9)
January (9)
2011
December (9)
November (16)
October (15)
September (14)
August (15)
July (16)
June (13)
May (27)
April (22)
March (21)
February (20)
January (21)
2010
December (19)
November (22)
October (16)
September (23)
August (23)
July (27)
June (24)
May (24)
April (21)
March (26)
February (19)
January (24)
2009
December (21)
November (20)
October (32)
September (25)
August (25)
July (47)
June (44)
May (34)
April (27)
March (35)
February (35)
January (35)
2008
December (37)
November (22)
October (31)
September (20)
August (30)
July (27)
June (18)
May (5)
April (6)
March (3)
February (1)
January (2)
2007
December (7)
October (1)