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Time Does Not Heal All Wounds

April 14, 2016 by Victoria Strong

Time heals all wounds. This is a lie.

Time does not heal. Not in and of itself. True healing requires a consciousness and constant work. Every day. For the rest of your life without your child.

I don’t say this because I have now managed to live 8 months without my Gwendolyn, an eternity...

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Announcing our 2016 EIA SMA Research Grantees

April 08, 2016 by editor

We are thrilled to announce our 2016 Emerging Investigator Awards (EIA) research grantees:

  • Dr. Sara Gombash Lampe, The Ohio State University: SMN deficient enteric submucosal neurons and gastrointestinal function in SMA
  • Sarah Tisdale, Columbia University: Role of SMN in cytoplasmic mRNA...
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On Coming Alive

February 14, 2016 by Victoria Strong

The On Coming Alive project is launching. And I am so honored to be among 72 writers talking about grief. Really talking about grief -- without taboo and without fear. All of us are experiencing deep grief. And all of us believe this should be talked about.

#OnComingAlive

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Helping Children Grieve

February 11, 2016 by Victoria Strong

Children experience deep grief - just like adults. They don't always have the emotional tools to process it all or even express what they are feeling (and let's be honest, adults often don't either). But what I've found is that children really need permission to grieve. Adults can be afraid of...

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Announcing our 2015 Emerging Investigator Awards $62,500 Finalist Grantee

January 28, 2016 by Bill Strong

We're excited to announce Dr. Erkan Osman of the University of Missouri as the 2015 $62,500 Finalist grantee for the Emerging Investigator Award (EIA). The EIA is an annual recognition established by the Gwendolyn Strong Foundation and FightSMA.

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